Background: In a recent exploratory randomized controlled trial, an online psychoeducation intervention for bipolar disorder
has been found to be feasible and acceptable to patients and may positively impact on their self-management behaviors and quality
of life.
Objective: The objective of the study was to investigate how these patients contribute to an online forum for bipolar disorder
and the issues relevant for them.
Methods: Participants in the intervention arm of the Bipolar Interactive PsychoEDucation (“BIPED”) trial were invited to
contribute to the Beating Bipolar forum alongside receiving interactive online psychoeducation modules. Within this virtual
participant observation study, forum posts were analyzed using thematic analysis, incorporating aspects of discourse analysis.
Results: The key themes which arose from the forum posts included: medication, employment, stigma, social support, coping
strategies, insight and acceptance, the life chart, and negative experiences of health care. Participants frequently provided personal
narratives relating to their history of bipolar disorder, life experiences, and backgrounds, which often contained emotive language
and humor. They regularly sought and offered advice, and expressed encouragement and empathy. The forum would have
benefitted from more users to offer a greater support network with more diverse views and experiences.
Conclusions: Online forums are inexpensive to provide and may offer peer support and the opportunity for patients to share
their experiences and explore issues related to their illness anonymously. Future research should focus on how to enhance patient
engagement with online health care forums
