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Newbould, Jennifer Louise

The National Service Framework for Children, Young People and Maternity Services, standard three, highlighted the importance of a young person's family in their care. It was advocated that health care professionals approach young people and their parents as partners. The aim of this thesis was to describe the nature of partnerships between young people and their parents in the management of asthma or diabetes, from the perspective of young people and their parents. Young people with asthma (aged 8 to 12 years) or diabetes (aged 8 to 15 years) were identified from GP surgery records and invited to participate in a home interview. Semi-structured interviews were conducted with parents and a topic guide used to interview young people. Quality of life (PedsQL) asthma or diabetes modules were completed by young people and their parents as proxy respondents. Forty-three young people with asthma and their parents and twenty-six young people with diabetes and their parents participated in the research. Partnerships were generally harmonious and characterised by a joint approach to the management of the condition, sharing of tasks and discussion of the condition and its management. Young people and their parents, in both parts of the study, identified problems with condition management in schools. Young people's and parents' experiences of consultations with health care professionals were also reported. Measurement of the quality of life of young people with asthma and diabetes identified differences between quality of life as reported by young people compared to reported by parent proxy respondents. The findings of this thesis provide health care professionals with an insight into the management of asthma and diabetes within the context of partnerships between young people and their parents

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Partnerships between young people and their parents in the management of asthma and diabetes

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https://discovery.ucl.ac.uk/id/eprint/10116673/1/Partnerships_between_young_peo.pdf

Partnerships between young people and their parents in the management of asthma and diabetes

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