Long Covid and health inequalities:what next for research and policy advocacy?

Abstract

Introduction: Organised by the Qualitative Long Covid Network, a workshop of qualitative Long Covid (LC) researchers, LC charity representatives and people with LC took place in June 2023 where research on the intersectional inequalities affecting LC prevalence, recognition and care was shared and discussed. Methods: Five key themes were drawn up from presentations, discussions and reflections during the workshop and are presented here. Results: The following five themes are discussed: the unfairness of LC; difficulties accessing care; mistrust of the healthcare system; lack of understanding of LC; and experience of stigma and discrimination. Factors that widen or narrow inequalities in LC were identified. Conclusion: A call for action is proposed on investigating and addressing inequality through a robust LC research agenda that speaks with conviction to policy and decision-makers. We argue there needs to be strong investment in research and evidence-based policy and practice that mitigates the worst effects of the condition and addresses inequalities in experience, treatment and support, which are experienced more often and more acutely by some of society’s most vulnerable and disadvantaged. Patient and Public (PPI) Contribution: Projects included in this article had PPI ongoing activity informing their research. A member of the CONVALESCENCE PPI group presented at the QLC Network ‘Long Covid and Health Inequalities’ workshop, as did members of Long Covid Kids, Long Covid Support and Long Covid SOS charities. All were invited to be co-authors of this articl