Health data for research - GDPR challenges

Abstract

<p>The <a href="https://by-covid.org/">BY-COVID</a> project's second <a href="https://by-covid.org/events/by-covid-general-assembly-2023/">Annual General Assembly</a> took place in Barcelona on October 9-10. DANS co-organised the workshop 'GDPR - common challenges when mobilising data', aiming to gather experiences, challenges, and solutions to GDPR-related issues when mobilising data for infectious disease research.  </p><p>The workshop gathered participants from BY-COVID and relevant projects, to gather experiences, best practices, as well as challenges and solutions identified. The workshop featured a presentation by Emilie Kraaikamp (DANS) on 'Health data for research - GDPR challenges'. The presentation provided an overview of how GDPR-related issues feature in the health data landscape, including issues surrounding secondary data use, barriers to international collaboration, and The European Health Data Space (EHDS) initiative. The current record includes the slides of this presentation.</p&gt