OBJECTIVE: Hepatobiliary tumors have evolving management guidelines. Patient educational needs and interest in community engagement are unknown. This study serves as a needs assessment.
METHODS: A prospective, needs assessment, survey study of hepatobiliary patients was performed (2016-2019). Surveys (
RESULTS: Seventy patients completed the survey (response rate = 41.4%). Most patients had completed surgical treatment (84.3%). C
CONCLUSION: Multidisciplinary care is complex and difficult for patients to navigate. Most patients have interest in educational resources and prefer online modalities. Patients understand multidisciplinary tumor boards, but communication could be improved.
INNOVATION: These data inform a new, innovative, approach to outreach efforts in this population
