“In conferences, everyone goes ‘health data is the future’ ”: an interview study on challenges in re-using EHR data for research in Clinical Data Warehouses

Abstract

International audienceMore and more hospital Clinical Data Warehouses (CDWs) are developed to gain access to EHR data. The rapid growth of investments in CDWs suggest a real potential for innovation in healthcare. However, it is still not confirmedthat CDWs will deliver on their promises as researchers working with CDWs face many challenges. To gain a better understanding of these challenges and how to overcome them, we conducted a series of semi-structured interviewswith EHR data experts. In this article, we share some initial results from the ongoing interview study. Two main themes emerged from the analysis of the transcripts of the interviews: the importance of infrastructures in terms ofdata and how it is generated, and the difficulty to make care, clinical research, and data science work together. Finally, based on the experts’ experience, several recommendations were identified when using a CDW