Additional file 1. Questionnaire: Information seeking in bipolar disorder

Alda, Martin

Ardau, Raffaella

Bauer, Michael

Bauer, Rita

Baune, Bernhard

Berk, Michael

Bersudsky, Yuly

Bilderbeck, Amy

Bocchetta, Alberto

Bossini, Letizia

Cheung, Eric Yat Wo

Chillotti, Caterina

Choppin, Sabine

Conell, Jörn

del Zompo, Maria

Dias, Rodrigo

Dodd, Seetal

Duffy, Anne

Etain, Bruno

Fagiolini, Andrea

Garnham, Julie

Geddes, John

Gildebro, Jonas

Glenn, Tasha

Gonzalez-Pinto, Ana

Goodwin, Guy

Grof, Paul

Harima, Hirohiko

Hassel, Stefanie

Henry, Chantal

Hidalgo-Mazzei, Diego

Kapur, Vaisnvy

Kunigiri, Girish

Lafer, Beny

Lam, Chun

Larsen, Erik Roj

Lewitzka, Ute

Licht, Rasmus

Lund, Anne Hvenegaard

Misiak, Blazej

Monteith, Scott

Munoz, Rodrigo

Nakanotani, Takako

Nielsen, René

O'Donovan, Claire

Okamura, Yasushi

Osher, Yamima

O’donovan, Claire

Paredes Castro, Angela Marianne

Piotrowski, Patryk

Reif, Andreas

Ritter, Philipp

Rybakowski, Janusz

Sagduyu, Kemal

Sawchuk, Brett

Schwartz, Elon

Scippa, Ângela Miranda

Slaney, Claire

Sulaiman, Ahmad Hatim

Suominen, Kirsi

Suwalska, Aleksandra

Tam, Peter

Tatebayashi, Yoshitaka

Tondo, Leonardo

Vieta, Eduard

Vinberg, Maj

Viswanath, Biju

Volkert, Julia

Whybrow, Peter

Zetin, Mark

Zorrilla, Iñaki

International Journal of Bipolar Disorders

PubMed

Abstract
              
                Background
                Information seeking is an important coping mechanism for dealing with chronic illness. Despite a growing number of mental health websites, there is little understanding of how patients with bipolar disorder use the Internet to seek information.
              
              
                Methods
                A 39 question, paper-based, anonymous survey, translated into 12 languages, was completed by 1222 patients in 17 countries as a convenience sample between March 2014 and January 2016. All patients had a diagnosis of bipolar disorder from a psychiatrist. Data were analyzed using descriptive statistics and generalized estimating equations to account for correlated data.
              
              
                Results
                976 (81 % of 1212 valid responses) of the patients used the Internet, and of these 750 (77 %) looked for information on bipolar disorder. When looking online for information, 89 % used a computer rather than a smartphone, and 79 % started with a general search engine. The primary reasons for searching were drug side effects (51 %), to learn anonymously (43 %), and for help coping (39 %). About 1/3 rated their search skills as expert, and 2/3 as basic or intermediate. 59 % preferred a website on mental illness and 33 % preferred Wikipedia. Only 20 % read or participated in online support groups. Most patients (62 %) searched a couple times a year. Online information seeking helped about 2/3 to cope (41 % of the entire sample). About 2/3 did not discuss Internet findings with their doctor.
              
              
                Conclusion
                Online information seeking helps many patients to cope although alternative information sources remain important. Most patients do not discuss Internet findings with their doctor, and concern remains about the quality of online information especially related to prescription drugs. Patients may not rate search skills accurately, and may not understand limitations of online privacy. More patient education about online information searching is needed and physicians should recommend a few high quality websites

Baune, Bernhard T

Paredes Castro, Angela M

Cheung, Eric Y W

Del Zompo, Maria

Goodwin, Guy M

Larsen, Erik R

Lund, Anne H

Nielsen, René E

O’Donovan, Claire

Rybakowski, Janusz K

Scippa, Ângela M

Sulaiman, Ahmad H

Whybrow, Peter C

TSpace Repository

Online information seeking by patients with bipolar disorder: results from an international multisite survey

Baune, Bernhard T.

Goodwin, Guy M.

Licht, Rasmus W.

Nielsen, René E.

Rybakowski, Janusz K.

Whybrow, Peter C.

Harvard University - DASH 

Erratum to: Online information seeking by patients with bipolar disorder: results from an international multisite survey

Licht, Rasmus W

International audienceBackground: Information seeking is an important coping mechanism for dealing with chronic illness. Despite a growing number of mental health websites, there is little understanding of how patients with bipolar disorder use the Internet to seek information.Methods: A 39 question, paper-based, anonymous survey, translated into 12 languages, was completed by 1222 patients in 17 countries as a convenience sample between March 2014 and January 2016. All patients had a diagnosis of bipolar disorder from a psychiatrist. Data were analyzed using descriptive statistics and generalized estimating equations to account for correlated data.Results: 976 (81 % of 1212 valid responses) of the patients used the Internet, and of these 750 (77 %) looked for information on bipolar disorder. When looking online for information, 89 % used a computer rather than a smartphone, and 79 % started with a general search engine. The primary reasons for searching were drug side effects (51 %), to learn anonymously (43 %), and for help coping (39 %). About 1/3 rated their search skills as expert, and 2/3 as basic or intermediate. 59 % preferred a website on mental illness and 33 % preferred Wikipedia. Only 20 % read or participated in online support groups. Most patients (62 %) searched a couple times a year. Online information seeking helped about 2/3 to cope (41 % of the entire sample). About 2/3 did not discuss Internet findings with their doctor.Conclusion: Online information seeking helps many patients to cope although alternative information sources remain important. Most patients do not discuss Internet findings with their doctor, and concern remains about the quality of online information especially related to prescription drugs. Patients may not rate search skills accurately, and may not understand limitations of online privacy. More patient education about online information searching is needed and physicians should recommend a few high quality websites

HAL Descartes

Online information seeking by patients with bipolar disorder: results from an international multisite survey: Erratum in Int J Bipolar Disord. 2017 Dec;5(1):18. doi: 10.1186/s40345-017-0082-8

Information seeking is an important coping mechanism for dealing with chronic illness. Despite a growing number of mental health websites, there is little understanding of how patients with bipolar disorder use the Internet to seek information.A 39 question, paper-based, anonymous survey, translated into 12 languages, was completed by 1222 patients in 17 countries as a convenience sample between March 2014 and January 2016. All patients had a diagnosis of bipolar disorder from a psychiatrist. Data were analyzed using descriptive statistics and generalized estimating equations to account for correlated data.976 (81 % of 1212 valid responses) of the patients used the Internet, and of these 750 (77 %) looked for information on bipolar disorder. When looking online for information, 89 % used a computer rather than a smartphone, and 79 % started with a general search engine. The primary reasons for searching were drug side effects (51 %), to learn anonymously (43 %), and for help coping (39 %). About 1/3 rated their search skills as expert, and 2/3 as basic or intermediate. 59 % preferred a website on mental illness and 33 % preferred Wikipedia. Only 20 % read or participated in online support groups. Most patients (62 %) searched a couple times a year. Online information seeking helped about 2/3 to cope (41 % of the entire sample). About 2/3 did not discuss Internet findings with their doctor.Online information seeking helps many patients to cope although alternative information sources remain important. Most patients do not discuss Internet findings with their doctor, and concern remains about the quality of online information especially related to prescription drugs. Patients may not rate search skills accurately, and may not understand limitations of online privacy. More patient education about online information searching is needed and physicians should recommend a few high quality websites

Oxford University Research Archive

English

HAL-Inserm

Jörn Conell

Rita Bauer

Tasha Glenn

Martin Alda

Raffaella Ardau

Bernhard T. Baune

Michael Berk

Yuly Bersudsky

Amy Bilderbeck

Alberto Bocchetta

Letizia Bossini

Angela Marianne Paredes Castro

Eric Yat Wo Cheung

Caterina Chillotti

Sabine Choppin

Maria Del Zompo

Rodrigo Dias

Seetal Dodd

Anne Duffy

Bruno Etain

Andrea Fagiolini

Julie Garnham

John Geddes

Jonas Gildebro

Ana Gonzalez-Pinto

Guy M. Goodwin

Paul Grof

Hirohiko Harima

Stefanie Hassel

Chantal Henry

Diego Hidalgo-Mazzei

Vaisnvy Kapur

Girish Kunigiri

Beny Lafer

Chun Lam

Erik Roj Larsen

Ute Lewitzka

Rasmus Licht

Anne Hvenegaard Lund

Blazej Misiak

Patryk Piotrowski

Scott Monteith

Rodrigo Munoz

Takako Nakanotani

René E. Nielsen

Claire O’Donovan

Yasushi Okamura

Yamima Osher

Andreas Reif

Philipp Ritter

Janusz K. Rybakowski

Kemal Sagduyu

Brett Sawchuk

Elon Schwartz

Ângela Miranda Scippa

Claire Slaney

Ahmad Hatim Sulaiman

Kirsi Suominen

Aleksandra Suwalska

Peter Tam

Yoshitaka Tatebayashi

Leonardo Tondo

Eduard Vieta

Maj Vinberg

Biju Viswanath

Julia Volkert

Mark Zetin

Iñaki Zorrilla

Peter C. Whybrow

Michael Bauer

Crossref

Background: Information seeking is an important coping mechanism for dealing with chronic illness. Despite a growing number of mental health websites, there is little understanding of how patients with bipolar disorder use the Internet to seek information. Methods: A 39 question, paper-based, anonymous survey, translated into 12 languages, was completed by 1222 patients in 17 countries as a convenience sample between March 2014 and January 2016. All patients had a diagnosis of bipolar disorder from a psychiatrist. Data were analyzed using descriptive statistics and generalized estimating equations to account for correlated data. Results: 976 (81 % of 1212 valid responses) of the patients used the Internet, and of these 750 (77 %) looked for information on bipolar disorder. When looking online for information, 89 % used a computer rather than a smartphone, and 79 % started with a general search engine. The primary reasons for searching were drug side effects (51 %), to learn anonymously (43 %), and for help coping (39 %). About 1/3 rated their search skills as expert, and 2/3 as basic or intermediate. 59 % preferred a website on mental illness and 33 % preferred Wikipedia. Only 20 % read or participated in online support groups. Most patients (62 %) searched a couple times a year. Online information seeking helped about 2/3 to cope (41 % of the entire sample). About 2/3 did not discuss Internet findings with their doctor. Conclusion: Online information seeking helps many patients to cope although alternative information sources remain important. Most patients do not discuss Internet findings with their doctor, and concern remains about the quality of online information especially related to prescription drugs. Patients may not rate search skills accurately, and may not understand limitations of online privacy. More patient education about online information searching is needed and physicians should recommend a few high quality websites

González-Pinto, Ana

Hatim Sulaiman, Ahmad

Aston Publications Explorer

Online information seeking by patients with bipolar disorder:results from an international multisite survey

University of Toronto Research Repository

Conell, Jörn

BOSSINI, LETIZIA

FAGIOLINI, ANDREA

Gonzalez Pinto, Ana

Hidalgo Mazzei, Diego

Nielsen, René E

Scippa, Ângela Miranda

Zorrilla, Iñaki

Archivio della Ricerca - Università degli Studi di Siena

http://dx.doi.org/10.1186/s40345-017-0082-8

Erratum to: Online information seeking by patients with bipolar disorder: results from an international multisite survey

Abstract

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Harvard University - DASH

TSpace Repository

HAL Descartes

Oxford University Research Archive

HAL-Inserm

Crossref

Aston Publications Explorer

University of Toronto Research Repository

Archivio della Ricerca - Università degli Studi di Siena