This Master's thesis explores the complex dynamics of health data in the digital age, focusing on its secure and efficient management and ethical considerations. It investigates the potential of implementing a Health Data Marketplace (HDM) in the Norwegian e-health sector, aiming to construct a seamless health data exchange platform. This study proposes the integration of an existing health data gateway, the Egde Health Gateway (EHG), with the HDM.
The research offers an in-depth analysis of existing limitations in health data exchange systems in Norway. It addresses current research gaps in Data Marketplace, Business Models, Gateways, and the Norwegian e-health context. Guided by two central research questions, this thesis delves into identifying essential components required to successfully implement an HDM in Norway and how this marketplace could be established using an existing data platform. Significantly, the thesis underscores the pivotal role of primary stakeholders in the HDM - Platform Operators, Platform Users, and Legal Authorities. The exploration reveals that Platform Operators are vital influencers, fostering collaboration and innovation within the ecosystem, while Platform Users and Legal Authorities ensure the marketplace's innovative and compliance aspects.
Additionally, this study identifies essential components for successfully integrating an HDM into an existing health data platform, including Data Standardization, Interoperability, Integration, Security, Trust, and Legal Frameworks, among others. The thesis marks a significant step towards realizing an HDM in the Norwegian e-health sector. It invites future research to broaden stakeholder perspectives, examine economic aspects of the HDM, and delve into ethical considerations and technological innovations. The findings from this exploration serve as a catalyst for leveraging health data effectively, securely, and ethically, contributing to improved healthcare outcomes, research, and innovation in Norway and beyond
