Halstead, E

Hastings, R

Lewis, S

Noyes, J

English

UCL Discovery

Mixed Method Synthesis Background As research into resilience is gaining momentum, policy makers and practitioners are showing an increasing interest in the concept of resilience and its influence on   quality of life1. There is however, little focus on resilience and children with disabilities. Children with disabilities are considered more vulnerable2, and at higher risk of           adversity (including from their disability itself) and from abuse by others.  It is important, therefore, to develop an initial evidence base by exploring the concept of            resilience in the context of children with disabilities, by reviewing existing literature and current policy documents relating to children with disabilities.   Design    A mixed method systematic review design will be used to address each  aspect of the review.  This will be based on the Evidence for Policy and Practice Information and                 Co-ordinating (EPPI) Centre (Institute of Education, London) and the EPPI Centre Guidance3.  The evidence will be in four streams; policy, conceptualisation,                 interventions and measures.   Resilience in Children and Young People with Disabilities:  A Systematic Review with Embedded Primary Research Elizabeth Halstead, Jane Noyes, Richard Hastings, Sheila Lewis                                           Review Streams and Questions  Stream 1: General Literature 1. How does mixed method evidence conceptualise resilience?  Stream 2: Policies 1. What do the policies say about resilience and   children with disabilities? 2. How does this relate to the conceptualisation of   resilience? 3. How does this relate to the programme theory                       underpinning the policy? Stream 3: Measures 1. What tools are being used to measure    resilience? 2. What concept of resilience is underpinning the tools? 3. What are the psychometric properties of the measures found? Stream 4: Interventions 1. What interventions have been developed and tested to promote resilience for children with     disabilities? 2. What concept of resilience has been used in these  interventions? 3.  What is the programme theory underpinning these interventions?   Systematic and extensive searches of CINAHL (1980 to 2011), MEDLINE (CSA EARLIEST to 2011),        psychINFO (CSA earliest to 2011), ASSIA (Earliest to 2012), Ovid     Nursing Full Text Plus (1995 to 2012), Cochrane Library, Web of Knowledge, Google/Google Scholar, websites,  references from journals.   Searches of policy documents, best guidance      documents and websites using PDF searches of   previously agreed search terminology. Systematic and extensive searches of       CINAHL (1980 to 2011), MEDLINE (CSA EARLIEST to 2011), psychINFO (CSA      earliest to 2011), ASSIA (Earliest to 2012),  Ovid     Nursing Full Text Plus (1995 to 2012),  Cochrane Library, Web of Knowledge, Google/Google Scholar,       websites, references from journals. Systematic and extensive searches of CINAHL (1980 to 2011), MEDLINE (CSA EARLIEST to 2011), psychINFO (CSA earliest to 2011), ASSIA (Earliest to 2012),  Ovid Nursing Full Text Plus (1995 to 2012), Cochrane Library, Web of Knowledge, Google/Google Scholar, websites, references from journals. Documents/journals or websites, which     include evidence to conceptualise            resilience in relation to children with           disabilities. Policy documents, which include information of        resilience in relation to children with disabilities An assessment of the psychometric        features of measures not included in      Windle, Bennett & Noyes review4 and a    description of previous measures used for measuring resilience in children. Quantitative/ Qualitative and mixed method studies which include an intervention to      promote resilience for children with disabilities. Synthesis 1 1. Quality assessment 2. Data extraction 3. Findings Synthesis 2 1. Data extraction 2. Findings   Synthesis 3 1. Quality assessment 2. Data extraction 3. Findings Synthesis 4 1. Quality assessment 2. Data extraction 3. Findings 1. Does the concept of resilience in the literature match the definitions and programme theory of resilience upon which policies are based?   2. Does the concept of resilience in the literature match the               definitions and programme theory behind the interventions                 that promote resilience?   3. Does the concept of resilience in the literature match the definitions and theory behind the measures?                         Primary Research – focus group, small group or individual interviews with children and young people with disabilities to                                                                                                                          establish:                                      What are the views of children and young people with disabilities on resilience and what does resilience mean to them?                                                                                                          Overarching Synthesis of findings to answer each review question and aim:  1.To what extent do children and young people’s views and meanings of resilience collected in primary research map onto current concepts and definitions in the literature?  2. What are the views of children and young people with disabilities on current resilience promoting interventions, and do their views and experiences match with the programme   theory and logic of interventions reported in the literature?  3. If designing a new resilience promoting intervention for children and young people with disabilities, what do children and young people think would work and what would the         intervention look like? Aim:  The aim of this systematic review is to conceptualise resilience in relation to children with disabilities. The systematic review will consider national policies, interventions and measures, in order to aid the understanding of the concept of resilience and address the following questions:  Quality Screening Exercise In Depth Appraisal (CASP ) –   Excluding policy documents Synthesis Objectives The ReAL Project Bangor University  Liz Halstead e.halstead@bangor.ac.uk  01248 383425 / 07816649871 Resilience And Life References:  1. Windle, G. (2010). What is resilience? A review and concept  analysis. Reviews in Clinical Gerontology 21; 152–169. 2. Gordon, R. et al, (2000) The Child’s World Training & Development Pack, NSPCC  3. Oliver et al. (2005).(EPPI) Centre methods (Institute of Education, London) and the EPPI Centre Guidance.  4. Windle G. Bennett, K.M, Noyes, J. (2011) A methodological review of resilience  measurement scales. Health and Quality of Life Outcomes.4;9. 

Resilience in Children and Young People with Disabilities: A Systematic Review with Embedded Primary Research

https://discovery.ucl.ac.uk/10124792/1/CYPRN%20poster1.pdf

Resilience in Children and Young People with Disabilities: A Systematic Review with Embedded Primary Research

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