Part one presents a conceptual introduction reviewing the literature on
dementia related knowledge, attitudes, and stigma among the general public, and
discusses the implications for the less common forms of dementia.
This thesis is a study within the studies of the Rare Dementia Support (RDS)
Impact study: a 5-year programme of research exploring the impact of
multicomponent support groups for those living with rare dementias. It is a
collaboration between University College London (UCL), Bangor University and
Nipissing University in Canada (http://www.raredementiasupport.org/research/) and
is joint funded by the Economic & Social Research Council (ESRC) and National
Institute for Health Research (NIHR) and ethical approval for the study was granted
by UCL Ethics Committee (Reference: Project ID: 8545/004). The presented thesis
is my own work, supervised by Dr. Joshua Scott Yes. I was involved in the design of
the study, completed the data collection and analysis independently with exception
for the following contributors:
• Emilie Brotherhood involved in the ethical approval amendment and
applications for this thesis.
• Joanna Stroud (Head of Online Learning at UCL) who set the study’ surveys
up on Future Learn the open education platform which houses The Many
Faces of Dementia Massive Open Online Course. Joanna also linked the
Surveys to Qualtrics
