What are the models and outcomes of Public and Patient Involvement (PPI) in cancer and palliative care research? A rapid review

Abstract

The improved outcomes obtained in research by using PPI policy have been well recognized in health and social care research in general. Yet, it is not quite evident how different PPI models are applied and translated into practice in cancer and palliative care organizations. There is a need to explore the evidences on which model/ framework/ tools/ guidelines are advocated and followed while implementing PPI policy. It is also important to identify what are the outcomes of using these PPI framework/ tools/ guidelines. This review aims to identify existing models and outcomes of PPI in cancer and palliative care research. The established definition for public involvement in research was used: Research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them. (NIHR INVOLVE 2017

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