Kooijmans, R.

Langdon, P.E.

Mercera, G.

Moonen, X.

English

BackgroundPersons with intellectual disabilities (ID) may have difficulties providing reliable and valid accounts of their personal experiences through self-report measures. The aim of the current study was to systematically review the peer-reviewed research literature on the adaptations needed to develop ‘ID-inclusive’ self-report measures. MethodA search of PsycINFO, PubMed, Web of Science and Google Scholar identified 49 studies that met inclusion criteria. A GRADE-CERQual assessment was performed to determine the level of confidence in the review findings. Results161 recommendations for the development of ‘ID-inclusive’ self-report measures were extracted from 49 included studies. Recommendations were presented in a GRADE-CERQual Summary of Findings table, according to a 5-stage model of instrument development. ConclusionsThis review offers much-needed practical guidance for clinicians and researchers on how to develop ‘ID-inclusive’ self-report measures. Recommendations for future research about self-report instrument development for use with people with ID are presented

International Migration, Integration and Social Cohesion online publications

The adaptation of self-report measures to the needs of people with intellectual disabilities: a systematic review

https://pure.uva.nl/ws/files/106897182/Adaptingself_reportmeasuresforpeoplewithID_asystematicreview_prepublicationversion.pdf

The adaptation of self-report measures to the needs of people with intellectual disabilities: a systematic review

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International Migration, Integration and Social Cohesion online publications