Co-designing an eHealth Intervention to Support the Self-Management of Fibromyalgia

Abstract

Fibromyalgia is a rheumatic pathology that causes a wide range of symptoms that can appear individually, or in sets, such as fatigue, sleep disorders, attention, and concentration deficit, also having connection with musculoskeletal, psychological, cardiovascular, gastrointestinal disorders. This pathology has a greater predominance in women and, in Portugal, for every man there are six women with the diagnosis and a total of approximately two hundred thousand people (2.1% of the population). The non-pharmaceutical way to mitigate these symptoms is through physical therapy. Considering the pandemic moment in which we live, there have been many difficulties in having physical therapy sessions because of the fear of infection through contact with their physical therapists. There are also people who live in more isolated areas and with little access to healthcare, who often must travel to larger urban centers to get the care they need. Moreover, these people have difficulties in self-managing their illness, where depending on the day their symptoms can get worse, and they do not know how to deal with them. Currently, there is no specialized solution for people with this diagnosis that solves these problems, so this dissertation aims to study and design a solution that allows people diagnosed with fibromyalgia to self-manage their pathology, as well as have a closer contact with their physical therapist, by being able to perform their sessions in a hybrid way, i.e., in person or remotely. This solution was designed using a Co-Design approach, following the Design Thinking methodology, where the community (people with the diagnosis, physiotherapists, researchers and academics) were involved in all stages of the process, from problem identification and idealization of their solutions, to prototyping and its validation. This solution involved the development of a mobile application, having several important components, such as self management, telerehabilitation, motivation, community and communication. In order to evaluate the whole process and the usability of the solution, tests were performed with end users who had not yet participated in the design of the solution

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