Bluck, Susan

Lind, Majse

    Aalborg UniversitetA digital life story book for older people with memory difficultiesLind, Majse; Bluck, SusanPublication date:2022Link to publication from Aalborg UniversityCitation for published version (APA):Lind, M., & Bluck, S. (2022). A digital life story book for older people with memory difficulties.General rightsCopyright and moral rights for the publications made accessible in the public portal are retained by the authors and/or other copyright ownersand it is a condition of accessing publications that users recognise and abide by the legal requirements associated with these rights.            - Users may download and print one copy of any publication from the public portal for the purpose of private study or research.            - You may not further distribute the material or use it for any profit-making activity or commercial gain            - You may freely distribute the URL identifying the publication in the public portal -Take down policyIf you believe that this document breaches copyright please contact us at vbn@aub.aau.dk providing details, and we will remove access tothe work immediately and investigate your claim.Downloaded from vbn.aau.dk on: September 08, 2023Background Methods ResultsDiscussionA digital life story book activity for older people with memory difficultiesMajse Lind Susan BluckAalborg University University of FloridaParticipantsInclusion criteria: Diagnosis of mild to moderate dementia/Alzheimer’s Disease, and/or, a score < 33 on TICS and/or score of ≤ 11 on TICS-MOD (working & short-term memory) . TICS-MOD range = 0 – 11 .N = 49 older adults with memory difficulties;33 Females, 16 Males; Age: M = 76.12, SD = 9.262, Range = 58-10083.7% White, 12.2% African American, 2% Asian American, 2% OtherRecruitment and  Compensation Listservs, emails to assisted living facilities, retirement communities, and social media across the US.  $60 for completion; $30 for partial completion.Procedure and Measures (online)Specific aims Those in the Life Story Book condition will, atfollow–up, report :1) More  positive self-functioning (clarity, esteem, continuity) compared to wait-list control.2) Improved memory quality and significance of the selected memories in book. 3) Positive evaluations of the activity in terms of sense of self, and life, and satisfaction with participating.  Two weeksSelf-report: Self-concept claritySelf-esteemSelf-continuityMemory Quality Q BOOK  interviewSelf-report: Self-concept claritySelf-esteemSelf-continuityMemory quality QEvaluate BOOK activitySeveral Q, 5-point scales  Baseline Follow-upLIFE STORY BOOK: Review life story book for two weeksCONTROL: No activity InitialscreeningCheck inclusion criteriaRandom assign to condition:LIFE STORY BOOKWAIT-LIST CONTROL   You may call it a book but really it’s a bridge between who we once were and who westill are deep insideRon, participanto A range of life story activities have been implemented for people suffering from memory decline. Based on the idea that maintaining a core set of significant personal memories is crucial for maintaining a sense of self (e.g., Subramaniam, Lai & Kayser-Jones, 2004; Woods, 2012) .o Persons facing decline may  maintain long-term personal memories but require significant external cueing (Kirk & Berntsen, 2018). o Digital technology offers cueing of important life story memories in vivid, interactive ways. o The current study investigates a digital life story book intervention,  using an evidence-based memory interview  for persons with memory difficulties.Though standard scales of self-functioning showed no improvement compared to a control,  participants reported that doing the Life Story Book activity  had positive implications for views of self and life.  They also reported that the BOOK  memories had been ‘reinforced’ and were more vivid, emotional, significant.o In future, measurement style and  sensitivity to change will be of major concern in evaluating life story interventions. o Duration and intensity of the intervention may  also need to be adjusted, though  compliance with longer-term ‘rehearsal’ of life story books may not be feasible. Aim 1. Participants in the life story book  condition did not increase self-functioning compared to control group.  Aim 2. Participants in the life story condition showed increase from baseline to follow-up in memory characteristics  t(22) = -2.39, p = .026:Aim 3.  Participants positively evaluated the activity. They had:• strengthened sense of being the same person as always (4.4/5),• realized how rich and varied their life has been (4.5/5),• had increased acceptance and understanding of self (4.0/5),• high satisfaction with having participated in activity (4.8/5)MeasuresSelf-report assessment: Self-concept clarity (Campbell et al., 1996), Self-esteem (Rosenberg, 1965), Self-continuity (Sedikides et al., 2015), memory quality (Rubin & Siegler, 2004), four feedback questions on the book activity. 0246Vividness Emotionality Personal sig Reflect "real you"Memory characteristics T2 T3

A digital life story book for older people with memory difficulties

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