The issue of blood transfusion in cases of children of Jehovah\u27s Witnesses

Abstract

Delo predstavlja soočenje z eno ključnih etičnih dilem, zavrnitev transfuzije krvi s strani Jehovovih prič. Tema, ki že sama po sebi deležna mnogih trenj, je deležna še toliko težje razprave, ko govorimo o primerih zavrnitve zdravljenja pri otrocih s strani njihovih staršev. Mnogi zdravniki se tako spopadajo s težko dilemo, rešiti življenje otroka in ravnati proti volji staršev ali spoštovati versko stališče staršev in poseči po nadomestnih poteh zdravljenja, ki pa so mnogo bolj tvegana. Slaba komunikacija in nezmožnost slišati argumente drug drugega med starši ter zdravstvenimi delavci privede do obravnave primera na sodiščih. V nalogi smo si prizadevali za čim bolj enakovredno predstavitev in vrednotenje stališč, tako prepričanja Jehovovih prič kot tudi medicine in prava. Delo nas spodbudi, da se podamo na pot kritičnega razmišljanja o vprašanju avtonomije pacienta in pacientovih zakonitih zastopnikih v povezavi s problemom transfuzije krvi pri otrocih Jehovovih prič. S ciljem spodbujanja boljše komunikacije in večje mere razumevanja obeh stališč nam delo sprva predstavi versko prepričanje Jehovovih prič, čemur sledi predstavitev določil medicinske etike in slovenske zakonodaje v povezavi z obravnavano temo. Poleg študija literature s tega področja smo se pri oblikovanju dela opirali tudi na dva intervjuja: prvega smo opravili z g. Brankom Klaričem, ki deluje v odboru Jehovovih prič za stike z bolnišnicami, drugega pa z dr. Markom Kavčičem, hematologom in pediatrom.The work depicts a confrontation with a key ethical dilemma, a rejection of blood transfusion by Jehovah\u27s Witnesses. A theme that has already many frictions in itself is even more difficult to discuss when we talk about the cases of rejection of treatment for children, by their parents. Many physicians are thus confronted with a difficult dilemma whether to save the life of a child and act against the will of his or her parents, or to respect the religious position of the parents and to intervene by alternative routes of treatment, which are much more risky. Poor comunication and inability to hear the arguments between parents and the medical staff (zdravstveno osebje) leads to the treatment of a case in courts. In the assignment we strived for the most equivalent presentation and evaluation of views, both the beliefs of Jehovah\u27s Witnesses as well as medicine and law. The work encourages us to take on the path of critical reflection on the issue of the autonomy of the patient and the patient\u27s legal agents (gardiens) in connection with the problem of blood transfusion in cases of Jehovah\u27s Witnesses children. With the aim of promoting better communication and a high degree of understanding of both aspects, the work initially presents the religious beliefs of Jehovah\u27s Witnesses, followed by a presentation of the provisions of the medical ethics and Slovenian legislation regarding the topic under consideration. In addition to the study of literature in this area, we also rely on two interviews in the design of the work: the first one with Mr. Branko Klarič, who works in the committee of Jehovah\u27s Witnesses as a contact with hospitals, and the other with Marko Kavčič, MD-a hematologist and pediatrician

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