Malati di SLA in Italia e meccanismi di diseguaglianza

Despite the fact that guidelines on amyotrophic lateral sclerosis (Andersen et alii 2012, Ministero della Salute 2010) have established criteria to regulate health cures and organizational aspects, many mechanisms tending to produce or accentuate inequalities among patients can still be observed. The very choice of the category in which to fit them (people affected by rare disease, handicap, disability, non-self-sufficiency, chronic or terminal illness) is not to be overlooked, as it affects people’s rights and the institutional forms of support available to them. The following reflections are part of a wider research which, starting from the national legal framework, focused on the Piedmont region to investigate health care practices and problem areas. This research was carried out by analyzing secondary sources as well as 51 semi-structured interviews with privileged witnesses on a national level and participants involved in ALS interventions on a regional level

On Old Age and Its Multiplicity: Exploring Discourses and Materialities about Getting Older

Old age is at the core of complex constellations composed by media discourses, care and mundane activities, and affective and technological practices that involve a wide range of human and non-human actors. While during the last years concepts such as “active” and “successful” ageing have more and more emphasised the individual responsibility of older adults in managing their own health, in the context of the Covid-19 pandemic elderly have been increasingly framed as vulnerable subjects. This Crossing Boundaries will explore the different instances assumed by the “old age” as an emerging object by the enactment of discourses and materialities. In doing so, this Crossing Boundaries mobilizes different theoretical perspectives, such as STS, media studies and sociology of health. The authors will explore three main issues: 1) the public discourse about the health status of older people; 2) the collective management of Alzheimer’s disease in and outside institutions; 3) the involvement of older adults in designing information and communication technologies

On Old Age and Its Multiplicity: Exploring Discourses and Materialities about Getting Older

Old age is at the core of complex constellations composed by media discourses, care and mundane activities, and affective and technological practices that involve a wide range of human and non-human actors. While during the last years concepts such as “active” and “successful” ageing have more and more emphasised the individual responsibility of older adults in managing their own health, in the context of the Covid-19 pandemic elderly have been increasingly framed as vulnerable subjects. This Crossing Boundaries will explore the different instances assumed by the “old age” as an emerging object by the enactment of discourses and materialities. In doing so, this Crossing Boundaries mobilizes different theoretical perspectives, such as STS, media studies and sociology of health. The authors will explore three main issues: 1) the public discourse about the health status of older people; 2) the collective management of Alzheimer’s disease in and outside institutions; 3) the involvement of older adults in designing information and communication technologies