Comorbidity, Pain, Utilization, and Psychosocial Outcomes in Older versus Younger Sickle Cell Adults: The PiSCES Project

Background. Patients with SCD now usually live well into adulthood. Whereas transitions into adulthood are now often studied, little is published about aging beyond the transition period. We therefore studied age-associated SCD differences in utilization, pain, and psychosocial variables. Methods. Subjects were 232 adults in the Pain in Sickle Cell Epidemiology Study (PiSCES). Data included demographics, comorbidity, and psychosocial measures. SCD-related pain and health care utilization were recorded in diaries. We compared 3 age groups: 16–25 (transition), 26–36 (younger adults), and 37–64 (older adults) years. Results. Compared to the 2 adult groups, the transition group reported fewer physical challenges via comorbidities, somatic complaints, and pain frequency, though pain intensity did not differ on crisis or noncrisis pain days. The transition group utilized opioids less often, made fewer ambulatory visits, and had better quality of life, but these differences disappeared after adjusting for pain and comorbidities. However, the transition group reported more use of behavioral coping strategies. Conclusion. We found fewer biological challenges, visits, and better quality of life, in transition-aged versus older adults with SCD, but more behavioral coping. Further study is required to determine whether age-appropriate health care, behavioral, or other interventions could improve age-specific life challenges of patients with SCD

Dungeness crab fishermen perceptions of injury causation and factors in staying safe

Background: Commercial fishing is a hazardous occupation in the United States (US). Injury surveillance data relies heavily on US Coast Guard reports, which capture injuries severe enough to require reporting. The reports do not incorporate the fishermen’s perspective on contributing factors to injuries and staying safe while fishing.  Materials and methods: We conducted a pre-season survey of Dungeness crab fishermen during 2015 to 2016. Community researchers administered surveys to fishermen. Respondents reported their opinions about factors contributing to injuries and staying safe, which were grouped into similar themes by consen- sus. Descriptive statistics were calculated to explore the number of injuries, crew position, age, and years of experience. Chi-square tests compared perceptions of injury causation, staying safe, and other factors.  Results: Four hundred twenty-six surveys were completed. Injury causation perceptions were sorted into 17 categories, and staying safe perceptions were sorted into 13 categories. The most frequently cited causes of injury were heavy workload (86, 21.9%), poor mental focus (78, 19.9%), and inexperience (56, 14.3%). The most frequently cited factors in staying safe while fishing were awareness (142, 36.1%), good and well-maintained fishing gear/vessel (41, 10.4%), and best marine practices (39, 9.9%). Opinions were not significantly associated with experiencing an injury in the past while fishing, but some opinions were significantly associated with crew position, age, and years of experience.  Conclusions: The perceptions of fishermen can be evaluated further and incorporated into training or intervention development. The fishermen-led approach of this project lends itself to developing injury pre- vention strategies that are effective, realistic and suitable. The resources available at FLIPPresources.org, such as informational sheets for new fishermen, sample crew agreements, and first aid kit resources, supply workers in this fishery with real solutions for issues they identified through their survey responses.

Factors influencing high school coaches’ adoption of injury prevention programs

OBJECTIVES: Despite documented efficacy of injury prevention programs (IPPs) to reduce sport-related lower extremity injury risk, there is evidence of a lack of widespread IPP adoption by high school coaches. This study identified factors related to non-adoption of IPPs by assessing coaches’ knowledge, attitudes, and behaviors related to prevention programs and comparing attitudes between adopter and non-adopter coaches. DESIGN: Cross-sectional METHODS: Head soccer and basketball coaches (n=141) from 15 Oregon high schools were invited to complete a web-based survey assessing their IPP-related knowledge, attitudes, and behaviors. RESULTS: Of the 66 coach respondents, 52% reported being aware of IPPs; 21% reported using an IPP with their team; and 9% reported having their student-athletes perform the IPP exactly as designed. No apparent differences in the attitudes towards the importance of injury prevention or the effectiveness of IPPs were identified between coaches that did and did not adopt an IPP. Perceptions that efficacious IPPs do not offer a relative advantage over coaches’ existing practices, do not align with coaches’ needs (compatibility), and are difficult to implement in their setting (complexity) emerged as key factors underlying coaches’ decisions not to adopt a program. Of those that did report adopting an IPP, just 43% (6/14) reported implementing the program as designed. CONCLUSIONS: Improving preventative practices of high school coaches requires more than improved dissemination to increase coach awareness. To improve the rate of IPP adoption and implementation fidelity, coach education should directly address issues related to relative advantage, compatibility, and complexity.This is an author's peer-reviewed final manuscript, as accepted by the publisher. The article is published in the Journal of Science and Medicine in Sport and available at: https://doi.org/10.1016/j.jsams.2015.03.00

Health related quality of life in sickle cell patients: The PiSCES project

BACKGROUND: Sickle cell disease (SCD) is a chronic disease associated with high degrees of morbidity and increased mortality. Health-related quality of life (HRQOL) among adults with sickle cell disease has not been widely reported. METHODS: We administered the Medical Outcomes Study 36-item Short-Form to 308 patients in the Pain in Sickle Cell Epidemiology Study (PiSCES) to assess HRQOL. Scales included physical function, physical and emotional role function, bodily pain, vitality, social function, mental health, and general health. We compared scores with national norms using t-tests, and with three chronic disease cohorts: asthma, cystic fibrosis and hemodialysis patients using analysis of variance and Dunnett's test for comparison with a control. We also assessed whether SCD specific variables (genotype, pain, crisis and utilization) were independently predictive of SF-36 subscales, controlling for socio-demographic variables using regression. RESULTS: Patients with SCD scored significantly worse than national norms on all subscales except mental health. Patients with SCD had lower HRQOL than cystic fibrosis patients except for mental health. Scores were similar for physical function, role function and mental health as compared to asthma patients, but worse for bodily pain, vitality, social function and general health subscales. Compared to dialysis patients, sickle cell disease patients scored similarly on physical role and emotional role function, social functioning and mental health, worse on bodily pain, general health and vitality and better on physical functioning. Surprisingly, genotype did not influence HRQOL except for vitality. However, scores significantly decreased as pain levels increased. CONCLUSION: SCD patients experience health related quality of life worse than the general population, and in general, their scores were most similar to patients undergoing hemodialysis. Practitioners should regard their HRQOL as severely compromised. Interventions in SCD should consider improvements in health related quality of life as important outcomes

Injury Risk Perception of Commercial Dungeness Crab Fishermen

The Fishermen Led Injury Prevention Program is the first and only research focused on non-fatal injury prevention among commercial fishermen. • No fishermen reported that they had zero chance of injury, regardless of injuries sustained in career and/or in the past year. • Fishermen who have sustained an injury in their career and/or in the past year, have a higher perception of injury risk. • There is no connection between a fisherman’s history with injury and the amount they worry about sustaining an injury.• Commercial fishing is one of the most dangerous professions in the United States. • Between 2002-2014 Dungeness crab fishermen had 209 fatalities per 100,000 full-time equivalent workers. • 405 surveys were collected by community researchers before the 2015-2016 Dungeness crab season. • We examine here the association of injury and risk perception

Pain site frequency and location in sickle cell disease: The PiSCES project

Treatment options for sickle cell disease (SCD) pain could be tailored to pain locations. But few epidemiologic descriptions of SCD pain location exist; these are based on few subjects over short time periods. We examined whether SCD pain locations vary by disease genotype, gender, age, frequency of pain, depression, pain crisis or healthcare utilization

The Effect of a Statewide Policy on High School Emergency Action Plans

Institutions sponsoring athletics must be prepared for emergencies. Due to this, more governing bodies are requiring a sports-related emergency action plan (EAP). Yet, the effects of these policies are unknown. We compared adoption of EAPs and associated best practices in Oregon high schools before and after a policy requiring an EAP. Athletic directors were invited to complete a survey during the year before the policy went into effect and again the following year. We assessed whether the school had a written EAP and if they did, was the EAP venue specific, available at the venue, distributed to personnel, and annually reviewed and rehearsed. Pre/post-policy proportions were analyzed using Fisher exact tests for all schools and then schools that completed both surveys. There was a significant increase of schools that reported having an EAP after the policy went into effect (all schools: 55% to 99% [p < 0.001] and schools responding both years: 60% to 98% [p < 0.001]). Venue specific EAPs also significantly increased but only when analyzing all responses (59% to 71% [p = 0.03]). No best practice recommendations related to EAP availability, distribution, review, or rehearsal changed after the policy. Schools met the minimum requirements of the policy, but other related best practices did not significantly improve