Preserving Social Media: the Problem of Access

As the applications and services made possible through Web 2.0 continue to proliferate and influence the way individuals exchange information, the landscape of social science research, as well as research in the humanities and the arts, has the potential to change dramatically and to be enriched by a wealth of new, user-generated data. In response to this phenomenon, the UK Data Service have commissioned the Digital Preservation Coalition to undertake a 12-month study into the preservation of social media as part of the ‘Big Data Network’ programme funded by the Economic and Social Research Council (ESRC). The larger study focuses on the potential uses and accompanying challenges of data generated by social networking applications. This paper, ‘Preserving Social Media: the Problem of Access’, comprises an excerpt of that longer study, allowing the authors a space to explore in closer detail the issue of making social media archives accessible to researchers and students now and in the future. To do this, the paper addresses use cases that demonstrate the potential value of social media to academic social science. Furthermore, it examines how researchers and collecting institutions acquire and preserve social media data within a context of curatorial and legislative restrictions that may prove an even greater obstacle to access than any technical restrictions. Based on analysis of these obstacles, it will examine existing methods of curating and preserving social media archives, and second, make some recommendations for how collecting institutions might approach the long-term preservation of social media in a way that protects the individuals represented in the data and complies with the conditions of third party platforms. With the understanding that web-based communication technologies will continue to evolve, this paper will focus on the overarching properties of social media, analysing and comparing current methods of curation and preservation that provide sustainable solutions

What do stroke survivors think about evidence based care they receive? Learning from insights at the periphery

Permission to archive the publisher pdf of this article was granted by the publisher in February 2012Rationale and aim of study: While exploring the experience of stroke survivors of secondary stroke prevention as part of a wider patient and public involvement service initiative, study participants willingly shared insights on other aspects of care that mattered to them. This is important as little is known about patients’ preferences for care. Methods: Data was generated from focus groups and semi-structured interviews that were held with 38 stroke survivors or their proxy respondents as part of an action research study. A framework analysis was used to examine data. Results: Our findings largely support current knowledge about the benefits of receiving evidence based stroke care. Although patients broadly appreciated being on a specialist unit, unexpectedly and contrary to best practice some expressed the wish to be treated elsewhere as they found the experience of being on a stroke unit difficult. Other findings included the need for more local peer support and difficulties surrounding transfer from hospital to home. Resultant actions included awareness training for staff about sensitively managing people’s perceptions about being on the stroke unit; development of shared computer based (IT) resources, and the establishment of a volunteer peer support system. Conclusion: The evidence base for the benefits of stroke unit care is unequivocal; however this model of care presents challenges for some. Involving patients in service development can inform small but key changes in practice that can help address inherent tensions in delivering evidence based services that are sensitive to patient preference.This project was funded by a grant from the Peninsula Primary Care Research Networ

Hematodinium infection seasonality in the Firth of Clyde (Scotland) nephrops norvegicus population: a re-evaluation

Hematodinium infections in Norway lobster Nephrops norvegicus from the Clyde Sea area (CSA) population, Scotland, UK, have previously been undetected in summer. This study aimed to establish if the CSA is actually devoid of infected N. norvegicus in this season. Two PCR assays, an ELISA and 2 tests that detect only patent infection (pleopod and body colour methods) were applied in a 21 mo study. Patent infection was seasonal, appearing predominantly in spring, while subpatent infection diagnosed by ELISA and PCR was highly prevalent in all seasons. Generalised linear modelling supported this assertion, as sampling in September and February significantly increased the probability of finding infected N. norvegicus (p < 0.01); infections were predominantly subpatent and patent respectively, at these times. Therefore, Hematodinium seasonality in N. norvegicus populations is likely to have been an artefact of insensitive diagnostic tests. Light Hematodinium infections were found using PCR assays when patent infections were at their most prevalent and intense, suggesting that infection develops at different rates in different N. norvegicus individuals and that only a portion of the total number of infected N. norvegicus die within a single year. These new data were added to a long-term data series for the CSA (1990 to 2008), which showed that after an initial 5 yr epidemic period, prevalence stabilised at 20 to 25%. Comparisons with ‘susceptible-infected-recovered/removed’ (SIR) models suggest that this high prevalence is maintained through high birth rates of susceptible host N. norvegicus

Action for Rehabilitation from Neurological Injury (ARNI): A pragmatic study of functional training for stroke survivors

This article has been made available through the Brunel Open Access Publishing Fund. Copyright @ 2013 Cherry Kilbride et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.This study evaluated the effectiveness of a twelve-week community-based functional training on measures of impairment, activity and participation in a group of stroke survivors. Isometric strength of the knee musculature, Centre-Of-Pressure (COP) based measures of balance, Berg Balance Scale (BBS), 10 m walk test, and the Subjective Index of Physical and Social Out come (SIPSO), were recorded at baseline, post-intervention, and after twelve weeks (follow-up). Exercise instructors delivered training once a week in a group format at a community centre. Significant improvement was noted in the BBS (p < 0.002), and 10 m walk speed (p = 0.03) post intervention which remained unchanged at follow-up. Total SIPSO score improved significantly post-intervention (p = 0.044). No other significant differences and no adverse effects were observed. It is possible that functional training provided more opportunity for the improvement of dynamic aspects of balance control that could be captured by the BBS but not with the traditional measures of balance using COP data. Results also suggest positive effects on the level of participation, and lack of association between measures of impairment and activity. Community based functional training could be effective and used to extend access to rehabilitation services beyond the acute and sub-acute stages after stroke.London Borough of Hillingdo

Stroke units: The implementation of a complex intervention

This article reports on selected findings from an action research study that looked at the lessons learnt from setting up a new in-patient stroke service in a London teaching hospital. Key participants in the design and evaluation of this 2-year study included members of the multi-professional stroke team and support staff within the unit, the hospital management team and representatives of patients and carers. Mixed methods (focus groups, indepth interviews, audits, documentary analysis, participant observation field notes) were used to generate data. Findings demonstrated positive change overtime with four main themes emerging from the process: building a team; developing practice-based knowledge and skills in stroke; valuing the central role of the nurse in stroke care; and creating an organisational climate for supporting change. The interplay of these non-linear, but interrelated factors is supported by complexity theory, which includes exploration of how the sum of a whole can be more than its constituent parts. Findings are likely to be of interest to practitioners, managers and policy makers interested in supporting change in a learning organisation

Hiraeth (n): a homesickness for a home you can\u27t return to, or that never was

...first time that year I felt myself and free. Independent from anything else and learned to rely on God. I needed away from home and ONU, so off to Utah we went

The Catholic New Left: Language, Liturgy, and Literature in Slant Magazine 1964-1970

What kind of language might fit readers for revolution, where the reader’s revolutionary destiny is understood to be revealed in the divine humanity of Jesus Christ? The first half of this question will be familiar as one of the concerns of the New Left in Britain in the 1960s, whose emphasis—in Raymond Williams’ formulation—on culture as ‘a whole way of life’ (Williams 281) continues to inform our justification (and more recently our defence) of the humanities. However, the twist is less familiar. Not only must we ask what the place of language is, how it unfolds in institutions and in literary artworks; we must also consider language unfolding in the context of the revelation of human destiny in the historical fact of Christ’s life, death and resurrection. This is not a question at the forefront of any recent argument concerning the centrality of culture for a revolutionary agenda. Yet renewed interest in the relationship between catholicism and the avant-garde, the analogy between poetic and liturgical form being pursued in philosophical theology, and the theological turn in literary studies suggests that a return to this question may not be untimely. In this direction, the efforts of the priests, critics and theologians who contributed to thirty issues of Slant magazine between 1964 and 1970 offers an important test case