Effective use of personal health records to support emergency services

Smart City systems capture and exchange information with the aim to improve public services. Particularly, healthcare data could help emergency services to plan resources and make life-saving decisions. However, the delivery of healthcare information to emergency bodies must be balanced against the concerns related to citizens’ privacy. Besides, emergency services face challenges in interpreting this data; the heterogeneity of sources and a large amount of information available represent a significant barrier. In this paper, we focus on a case study involving the use of personal health records to support emergency services in the context of a fire building evacuation. We propose a methodology involving a knowledge engineering approach and a common-sense knowledge base to address the problem of deriving useful information from health records and, at the same time, preserve citizens’ privacy. We perform extensive experiments involving a synthetic dataset of health records and a curated gold standard to demonstrate how our approach allows us to identify vulnerable people and interpret their particular needs while avoiding the disclosure of personal information

The ATEN Framework for Creating the Realistic Synthetic Electronic Health Record

Realistic synthetic data are increasingly being recognized as solutions to lack of data or privacy concerns in healthcare and other domains, yet little effort has been expended in establishing a generic framework for characterizing, achieving and validating realism in Synthetic Data Generation (SDG). The objectives of this paper are to: (1) present a characterization of the concept of realism as it applies to synthetic data; and (2) present and demonstrate application of the generic ATEN Framework for achieving and validating realism for SDG. The characterization of realism is developed through insights obtained from analysis of the literature on SDG. The development of the generic methods for achieving and validating realism for synthetic data was achieved by using knowledge discovery in databases (KDD), data mining enhanced with concept analysis and identification of characteristic, and classification rules. Application of this framework is demonstrated by using the synthetic Electronic Healthcare Record (EHR) for the domain of midwifery. The knowledge discovery process improves and expedites the generation process; having a more complex and complete understanding of the knowledge required to create the synthetic data significantly reduce the number of generation iterations. The validation process shows similar efficiencies through using the knowledge discovered as the elements for assessing the generated synthetic data. Successful validation supports claims of success and resolves whether the synthetic data is a sufficient replacement for real data. The ATEN Framework supports the researcher in identifying the knowledge elements that need to be synthesized, as well as supporting claims of sufficient realism through the use of that knowledge in a structured approach to validation. When used for SDG, the ATEN Framework enables a complete analysis of source data for knowledge necessary for correct generation. The ATEN Framework ensures the researcher that the synthetic data being created is realistic enough for the replacement of real data for a given use-case

DNA Fingerprinting

This project investigated the impact of the new technology of DNA fingerprinting on society, especially the legal system and database ethics. Our conclusions propose an expansion of DNA databases to include individuals convicted of any felony, not just violent crimes. The benefit to society of such DNA databases to identify unknown corpses, determine paternity, place a suspect at the scene of a crime, develop leads where otherwise there were none, and link crimes to identify serial criminals outweighs any privacy issues especially for convicted felons

When does disengagement correlate with learning in spoken dialog computer tutoring?

We investigate whether an overall student disengagement label and six different labels of disengagement type are predictive of learning in a spoken dialog computer tutoring corpus. Our results show first that although students' percentage of overall disengaged turns negatively correlates with the amount they learn, the individual types of disengagement correlate differently with learning: some negatively correlate with learning, while others don't correlate with learning at all. Second, we show that these relationships change somewhat depending on student prerequisite knowledge level. Third, we show that using multiple disengagement types to predict learning improves predictive power. Overall, our results suggest that although adapting to disengagement should improve learning, maximizing learning requires different system interventions depending on disengagement type. © 2011 Springer-Verlag Berlin Heidelberg

Synthea: An approach, method, and software mechanism for generating synthetic patients and the synthetic electronic health care record

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