22 research outputs found

    A Method for Identifying Positive Deviant Local Health Departments in Maternal and Child Health

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    Local health departments (LHDs) are under increasing pressure to improve performance with limited resources. While research has found that financial resources may be associated with better health outcomes, there are some LHDs that maintain exceptional performance, even with limited budgets. Our interest was identifying LHDs that positively deviate in MCH outcomes compared to their peers while taking into account local context including geography and finances. We found that our method for identifying positive deviants was effective, and that LHD expenditures may not be linked to MCH outcomes. The next step in our work is to conduct in-depth analysis with positive deviants to understand the practices they use to achieve exceptional health outcomes

    Negotiating severity behind the scenes: prenatal testing in Germany

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    Foetal-related severity is a key concept in policy and legislation relating to access to both reproductive technologies and selective abortions in many countries around the world, but not in Germany. This study sheds light on how ‘severity’ in the context of prenatal testing is understood and negotiated within the particular socio-cultural and legal context of Germany, where ‘severity’ relating to foetal clinical findings neither counts as a justification to implement population prenatal screening programs, nor as a legal ground to terminate pregnancy. This study explores the views of women who undergo prenatal testing, as well as of professionals who encounter them, through semi-structured interviews. It showcases how they frame severity and questions whether the existing legal and regulatory framework relating to prenatal testing and termination of pregnancy addresses their concerns and needs regarding reproductive decision-making. The interviews (n = 27) reveal that despite it being legally outside the explicit reasons for testing and termination of pregnancy, both women and professionals negotiate severity behind the scenes. Their interpretation of severity is highly context-dependent and relies on clinical, social and familial facets. Their perceptions of severity guide them in their handling of and decision-making around pregnancy management. Acknowledging the personal nature of severity assessment and providing professional or legal guidance which explicitly mentions foetal anomaly as a legitimate factor in pregnancy management could provide healthcare professionals and patients with the room needed to manage the pregnancy favourably

    Non-invasive prenatal testing in Germany and Israel: a matter of course or a matter of discourse?

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    This chapter compares Germany and Israel, that reached different decisions regarding noninvasive prenatal testing (NIPT) implementation, and describes the associated debates and stakeholders' involvement in both. The Israeli decision-making provoked hardly any public discourse, whereas in Germany it triggered extensive debate involving a broad range of stakeholders. Although the German legal and regulatory framework is more restrictive, and despite diverse opposition, the process led to public coverage of NIPT. Yet, despite a permissive framework, it was rejected in Israel. However, opposing explicit agendas underlie this: Israel aims to prevent disability, and Germany to minimize invasive testing and its associated risks

    Views on disability and prenatal testing among families with Down syndrome and disability activists: a comparative analysis of interviews from Germany and Israel

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    The prenatal genetic testing arena has witnessed great changes over the past decades and has been the focus of extensive discussion of its ethical, legal, and social implications. Germany and Israel were previously known for strongly contrasting regulations and attitudes of both professionals and laypeople towards genetic testing. Based on qualitative analysis of 37 semi-structured interviews, this study compares German and Israeli family members of individuals with Down syndrome and disability activists, thereby examining the interplay between lived experience and cultural scripts and their impact on the formation of personal views toward disability and prenatal testing. We have found that the differences between Germany and Israel remain, despite the emergence of new technologies, and that family members and disability activists reflect the norms of their socio-cultural environments, thereby emphasising the role society plays in shaping the views of those with direct experience of disability

    What does prenatal testing mean for women who have tested?

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    We have conducted and analysed 49 qualitative interviews with women in Germany and Israel who had actually taken a prenatal test. The analysis was focussed on the meanings attributed to testing, i.e. their reasons and aims of testing. Seven typical meaning patterns have been found. They range from seeking empowerment from the knowledge gained, avoiding suffering, being prepared for a child with special needs to satisfying the social environment, or fulfilling the physician's recommendation. The findings give insight into the hermeneutics of testing from the point of view of those who have tested

    Variability in school closure decisions in response to 2009 H1N1: a qualitative systems improvement analysis

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    <p>Abstract</p> <p>Background</p> <p>School closure was employed as a non-pharmaceutical intervention against pandemic 2009 H1N1, particularly during the first wave. More than 700 schools in the United States were closed. However, closure decisions reflected significant variation in rationales, decision triggers, and authority for closure. This variability presents the opportunity for improved efficiency and decision-making.</p> <p>Methods</p> <p>We identified media reports relating to school closure as a response to 2009 H1N1 by monitoring high-profile sources and searching Lexis-Nexis and Google news alerts, and reviewed reports for key themes. News stories were supplemented by observing conference calls and meetings with health department and school officials, and by discussions with decision-makers and community members.</p> <p>Results</p> <p>There was significant variation in the stated goal of closure decision, including limiting community spread of the virus, protecting particularly vulnerable students, and responding to staff shortages or student absenteeism. Because the goal of closure is relevant to its timing, nature, and duration, unclear rationales for closure can challenge its effectiveness. There was also significant variation in the decision-making authority to close schools in different jurisdictions, which, in some instances, was reflected in open disagreement between school and public health officials. Finally, decision-makers did not appear to expect the level of scientific uncertainty encountered early in the pandemic, and they often expressed significant frustration over changing CDC guidance.</p> <p>Conclusions</p> <p>The use of school closure as a public health response to epidemic disease can be improved by ensuring that officials clarify the goals of closure and tailor closure decisions to those goals. Additionally, authority to close schools should be clarified in advance, and decision-makers should expect to encounter uncertainty disease emergencies unfold and plan accordingly.</p
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