13 research outputs found
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Comparing activity engagement of people aged 18 to 64 years with and without Parkinsonâs disease
Introduction
Measuring activity engagement using the Activity Card Sort Australia (18â64) supports occupational therapists and clients to identify goals for therapeutic interventions. The aim of this study was to investigate activity engagement for people aged 18 to 64 years with and without Parkinsonâs disease.
Method
Thirty-two participants, 16 people with Parkinsonâs disease (mean age 57.8) and 16 healthy adults (mean age 53.1), were required to sort 85 visual activity cards into one of five categories: ânever doneâ, âdo not do nowâ, âdo nowâ, âdo less nowâ and âgiven upâ. The retained activity values were calculated and compared using the MannâWhitney U Test.
Results
The overall retained activity scores were not significantly different (pâ=â.81); however, the group with Parkinsonâs disease had higher retained scores in the physical activities domain (pâ=â.04)
Conclusion
The preventative exercise regimes of people with Parkinsonâs disease seems to influence activity engagement patterns. A more detailed understanding of activity engagement may further help form the basis of meaningful intervention
Comparing activity engagement of people aged 18 to 64 years with and without Parkinson's disease
Introduction: Measuring activity engagement using the Activity Card Sort Australia (18â64) supports occupational therapists and clients to identify goals for therapeutic interventions. The aim of this study was to investigate activity engagement for people aged 18 to 64 years with and without Parkinsonâs disease. Method: Thirty-two participants, 16 people with Parkinsonâs disease (mean age 57.8) and 16 healthy adults (mean age 53.1), were required to sort 85 visual activity cards into one of five categories: ânever doneâ, âdo not do nowâ, âdo nowâ, âdo less nowâ and âgiven upâ. The retained activity values were calculated and compared using the MannâWhitney U Test. Results: The overall retained activity scores were not significantly different (p ÂŒ .81); however, the group with Parkinsonâs disease had higher retained scores in the physical activities domain (p ÂŒ .04) Conclusion: The preventative exercise regimes of people with Parkinsonâs disease seems to influence activity engagement patterns. A more detailed understanding of activity engagement may further help form the basis of meaningful interventions
Remotely assessing symptoms of Parkinson's disease using videoconferencing: a feasibility study
Purpose. To evaluate the feasibility of assessing a person's symptoms of Parkinson's disease (PD) in their home using the videoconferencing technology they already possess, without a home visit. Method. Eleven participants with PD completed the Movement Disorder Society Unified Parkinson's Disease Rating Scale (MDS-UPDRS) face-to-face and then via videoconferencing within a two-week period. Participants used free software and the computers and webcams available at their home to complete the videoconference assessment with a clinical rater scoring remotely. Clinical raters and participants provided feedback on the experience. Results. Excluding rigidity and postural stability, between zero and seven items could not be completed in the assessment of each participant (median 2.0, IQR 1.0-4.0). Between face-to-face and videoconference assessments, the median difference in scores was 3.0 (IQR 1.5-9.0). Content analysis of feedback identified the clinical raters' reasons why some scoring could not be completed and the participants' hope for future clinical application. Conclusions. In using free everyday technology available in participants' homes, MDS-UPDRS ratings could be obtained without an initial home visit; however some items were unable to be scored for some participants. Use of a protocol or technological advances are likely to reduce missing items
Impact of deep brain stimulation on people with Parkinsonâs disease: A mixed methods feasibility study exploring lifespace and community outcomes
Background Deep brain stimulation is a surgical treatment for Parkinson's disease. Its impacts on motor symptoms are widely reported; however, little is known about the broader impact of deep brain stimulation on the community lives of people with Parkinson's disease. Lifespace is a measure of lived community mobility, providing an indication of community access and participation. Aims This pilot study explored the feasibility of remotely monitoring the qualitative and quantitative community outcomes related to deep brain stimulation. Methods A longitudinal mixed methods study with a convergent design was undertaken exploring the lifespace, quality of life, life satisfaction and lived experiences of people with Parkinson's disease before and after deep brain stimulation. Data were collected through questionnaires, semi-structured interviews and a smartphone-based application which collected geolocation data. Results Quantitative and qualitative data from eight participants living with Parkinson's disease were analysed and integrated. At baseline, participants had a median age of 68 years and a median Hoehn and Yahr score of 2. Measuring a range of community-based outcomes indicated different change trajectories for individuals across outcomes. Key content areas were developed from the qualitative data: participation in occupations and travel and home. This study indicates the potential value of including geolocation data-based lifespace collection in metropolitan and regional areas. Conclusions Monitoring lifespace in conjunction with subjective measures provides insights into the complex and individually varied experiences. Further research could explore the impacts of deep brain stimulation on occupations and community participation to gain a deeper understanding of the related needs and support clinical approaches