O desafio para o controle domiciliar em crianças e adolescentes diabéticas tipo1 El desafío para el control domiciliario en niños y adolescentes diabéticos tipo 1 The challenge of caring for children and adolescents with type-1 diabetes at home

Estudo descritivo com mães de crianças e adolescentes portadores de diabetes tipo 1, com o objetivo de identificar os recursos disponíveis e de analisar as dificuldades que essas mães encontram para o controle domiciliar. Para o alcance dos objetivos, empregou-se entrevista dirigida, cujos resultados permitiram concluir que os instrumentos e equipamentos utilizados no domicílio para o controle do diabetes são escassos e, quando disponíveis, não são manuseados adequadamente. A comunicação das mães com a equipe de saúde mostrou-se limitada. Os resultados apontam para a necessidade de eqüidade no atendimento às famílias de crianças e adolescentes diabéticos tipo 1, fornecendo apoio para que estas possam lidar com a criança portadora de doença crônica.<br>Estudio descriptivo con madres de niños y adolescentes portadores de Diabetes tipo 1, con el objetivo de identificar los recursos disponibles y analizar las dificultades que esas madres encuentran para el control domiciliario. Para alcanzar los objetivos, realizamos una entrevista dirigida, cuyos resultados nos permitieron concluir: los recursos utilizados en el domicilio para el control de la diabetes son escasos y cuando están disponibles, no son utilizados adecuadamente. La comunicación de las madres con el equipo de salud se mostró limitada. Percibimos también la necesidad de equidad en la atención a las familias de niños y adolescentes diabéticos tipo 1, ofreciendo apoyo y soporte para que estos puedan lidiar con el niño portador de enfermedad crónica.<br>This is a descriptive study concerning mothers of children and adolescents with type-1 diabetes. Its purpose is to identify available resources and analyze the difficulties that these mothers find to control the disease at home. To that end, direct interviews were used and the results enabled us to reach the following conclusions: the resources used for the control of diabetes at home are scarce and, when available, they are not handled adequately; communication between mothers and the health care team was limited. The results also pointed to the need for equity in the assistance to families of children and adolescents with type-1 diabetes by providing support for such families to manage children with chronic diseases

The experiences of mothers caring for a child with severe atopic eczema

Atopic eczema is a relatively common disease which frequently occurs during childhood.This paper reports the findings of a research study which explored the effects upon family life of caring for a child with severe atopic eczema.Seventy‐seven accounts written by mothers of preschool children with this disease were analysed using qualitative latent content analysis.The focus of this paper is on the implications of the disease for the mothers' role and the additional work generated by the disease.The implications of these findings for nursing practice, in particular the work of health visitors and paediatric community nurses, is discussed.Throughout this paper the term ‘nurse’ is used to describe both nurses and health visitors