Caring for Individuals with Fibrodysplasia Ossificans Progressiva (FOP): A Treatment Manual for Occupational Therapists

Fibrodysplasia Ossificans Progressiva is a rare and disabling genetic disorder that results in ossification of the soft tissues (Kaplan, Xu, et al., 2008; Kocyigit, Hizil, Hemis, Sabah, & Memis, 2001). There is a lack of research and literature on therapeutic intervention for those with a diagnosis of FOP. However, occupational therapists (OTs) can help those with FOP increase their quality of life through enhancement of activities of daily living (Kaplan, Le Merrer, et al., 2008). Overall, this product will serve as a guide for occupational therapists working with individuals diagnosed with FOP. The benefits of this product will be determined by the number of individuals who display interest in the use of this scholarly project. The scholarly project is presented in the following four chapters. Chapter II presents the professional literature review regarding the definition and treatment recommendations relating to FOP. Chapter III will present the methodology of how the information from the literature review was obtained as well as education to develop the treatment manual. Chapter IV presents the actual treatment manual titled Caring For Individuals With Fibrodysplasia Ossificans Progressiva (FOP): A Treatment Manual For Occupational Therapists. Chapter V provides the conclusion, recommendations, and limitations of the scholarly project. The limitations of the product include the lack of evidence-based literature specific to occupational therapy and FOP. Another limitation is that FOP is a rare genetic disorder and not many occupational therapists will work with individuals diagnosed with FOP. The product may be implemented by adapting the product as a guide for occupational therapists treating individuals with FOP through a continuing education workshop. Occupational therapists that are currently working with individuals who are diagnosed with FOP can also utilize this product. Overall, this product will serve as a guide for OTs working with individuals diagnosed with FOP. The benefits of this product will be determined by the number of individuals who display interest in the use of this scholarly project. It is recommended that further research be done regarding occupational therapy treatment for individuals with FOP. More evidence-based research is needed to ensure quality treatment is provided for individuals diagnosed with FOP. Other suggestions to further the usefulness of this product include publication of information regarding OTs working with individuals diagnosed with FOP