Designing a stated choice experiment: The value of a qualitative process

Designing a stated or discrete choice experiment (DCE) involves a process of developing, testing and optimizing the experiment questionnaire. This process is important for the success of the experiment and the validity of the results, but it is often not reported thoroughly. In the field of health care, one faces challenges in relation to what makes sense both for the respondent and what has clinical relevance, especially in situations with little evidence and unclear choices, where the decision making process is not clear or informed. This is the case for degenerative spine diseases, where the selection of candidates for surgical rather than non-surgical treatment has been widely discussed and where surgery rates accordingly vary across settings. In the present work, we demonstrated how the qualitative process significantly impacted and guided the design, and it was clear that a less thorough qualitative process would have resulted in a less useable and valid design. To elicit relevant attributes and levels for a DCE, fieldwork in clinical departments in Danish hospitals was performed and has been supplemented by qualitative interviews with patients and doctors. Systematic and thorough qualitative investigation of the decision context relevant attributes and levels and appropriate framing appears valuable in the process of designing a DCE for quantitative pilot testing

Social relations and healthcare utilisation among middle-aged and older people:study protocol for an implementation and register-based study in Denmark

Abstract Background While previous research establishes an association between social relations, health and use of healthcare services among older people, how to implement this knowledge in real-life settings has received much less attention. This study will explore the relationship between social relations, health and use of healthcare services in a Danish mid-life population sample. In addition, the study will explore individual and contextual factors affecting the implementation of a group-based life story intervention aimed at establishing and strengthening social relations among older people at nursing homes in Denmark. Methods/design A combined quantitative register-based approach and a qualitative implementation approach will be applied in this study. First, we will quantitatively analyse the relationship between social relations, health status and use of healthcare services among middle-aged people in Denmark by linking survey data on social relations, loneliness, self-perceived health and disease status from the Copenhagen Aging and Midlife Biobank (CAMB) (n = 7191) with national registries through the Public Health Database on use of healthcare services and demographic and socioeconomic factors. Second, we will qualitatively analyse individual and contextual factors affecting the implementation process of the group-based life story intervention based on semi-structured interviews (n = 16), observations and field notes with and among intervention stakeholders, i.e., participants and group leaders facilitating the intervention. Discussion The results of this study are expected to improve knowledge about mechanisms through which social relations are associated with health status and use of healthcare services and to inform the implementation of future interventions targeting social relations among older people at nursing homes. Trial registration The study has been registered and approved by the Danish Data Protection Agency. Seperate approvals have been attained for the qualitative data (Approval No. SUND-2016-08), and for the quantitative data in the CAMB database which has also received approval from the local ethical committee (approval No.H-A-2008-126 and No. 2013–41-1814, respectively)

Introduction: Sensations, Symptoms and Healthcare Seeking

This is a post-peer-review, pre-copyedited version of an article published in Anthropology in Action. The definitive publisher-authenticated version Andersen, R.S., Nichter, M. & Risør, M.B. (2017). Introduction. Sensations, Symptoms and Healthcare Seeking. Anthropology in Action. 24(1), 1-5 is available online at: https://doi.org/10.3167/aia.2017.240101.Inspired by the sensory turn in the humanities, anthropologists have coined the term ‘an anthropology of the senses’ to describe the study of the perceptual construction and output of bodily sensations and sense-modalities (cf. Howes 2006; Nichter 2008). Starting from the premise that different cultures and social settings configure, elaborate and extend the senses in different directions, key proponents have argued for a greater empirical and analytical attention to the cultural embeddedness and socio-biological basis of bodily perception and experience. This follows a rethinking of a series of theoretical (cf. Hinton et al. 2008; Ingold 2011) and methodological commitments in anthropology (cf. Pink 2009; Stoller 2004) that also holds relevance for anthropological studies of health and illness, which is the focus of this special issue on sensations, symptoms and healthcare seeking

Comorbidities and Treatment Strategies in Bullous Pemphigoid: An Appraisal of the Existing Litterature

Bullous Pemphigoid is an autoimmune skin blistering disease. It is caused by deposition of auto antibodies along the dermal-epidermal border leading to inflammation. The antibodies are directed against anchoring filaments in the epidermis, but these antigens are also present in the neurological tissues and this has led to speculation of an association between multiple sclerosis and bullous pemphigoid. Additionally recent epidemiological studies have pointed at an increased risk of cardio-vascualr diseases and an increased moratality among the patients with bullous pemphigoid. In this mini review we present the recent findings in this area and as well as the treatment strategies when comorbidities are taken into consideration

Cancer-before-cancer

Approaching the presence of cancer in everyday life in terms of mythologies, the article examines what cancer is and how cancer-related potentialities are enacted and embodied in the context of contemporary regimes of anticipation. Based on ethnographic fieldwork in a suburban Danish middle-class community among people who were not immediately afflicted by cancer, we describe different and paradoxical cancer mythologies and show how they provide multiple ways of understanding, anticipating, and dealing with cancer in everyday life. Special attention is paid to the relation between biomedically informed notions of symptoms and bodily processes, and a ghostly and muted presence of cancer, particularly when people are faced with more tangible cancer worries. We explore how contemporary cancer disease-control strategies emphasising ‘symptom awareness’ interweave with and add to cancer mythologies. We suggest that these strategies also carry moral significance as directives (be aware of early signs of cancer and seek care in time), and create an unintended illusion of certainty that does not correspond with everyday embodied forms of uncertainty and ambiguity. We argue that paying attention to the continuous cultural configurations of cancer that exist ‘before cancer’ will increase understanding of how the public health construction of ‘cancer awareness’ relates to everyday health practices such as symptom experience and health care seeking

Skovvejen/Skovparken 2023. Følgeevaluering - 2. runde.

Rapporten præsenterer den anden af i alt fire undersøgelser, der gennemføres i Skovvejen/Skovparken i perioden frem til 2030. Formålet er løbende at kortlægge bydelens fysiske og sociale udvikling. Resultaterne vil senere blive sammenholdt med resultater fra tilsvarende undersøgelser i 14 andre boligområder, der ligesom Skovvejen/Skovparken er omfattet af Parallelsamfundsaftalens krav om omfattende fysiske forandringer