Eisenberg-Poppel Family collection 1903-1945

The collection is composed of official documents pertaining to the life of Max Eisenberg and his immediate family, specifically relating to his immigration to the United States from present day Ukraine to Philadelphia, Pennsylvania.Max Eisenberg was born 1887 as Mendel Ber Lefkowicz in Sadagora, Bukovina (then Austria, today Sadhora, Ukraine), the son of Ruchel Lefkowicz. He was a tailor, who immigrated to the United States, where he became a naturalized citizen in 1915. His wife was Fannie Eisenberg, née Pecker, (1889 – 1979) with whom he had 3 children.Finding aid available onlineProcesseddigitizedDigital Imag

Informed consent for next-generation nucleotide sequencing studies: Aiding communication between participants and investigators

INTRODUCTION: Obtaining informed consent from prospective participants for research studies that include next-generation nucleotide sequencing (NGS) presents significant challenges because of the need to explain all the potential implications of participating, including the possible return of incidental findings, in easy-to-understand language. METHODS AND RESULTS: After reviewing the consent processes at other institutions, we decided to supplement the protocol-specific informed consent form with the following: (1) a short pamphlet for the prospective participant that includes a series of questions that she or he is encouraged to ask the investigator, and (2) a more detailed companion guide for investigators to help them develop simple-language answers to the questions. Both documents are available to use or modify. CONCLUSIONS: We propose an approach to obtaining informed consent for NGS studies that encourages discussion of key issues without creating a complex, comprehensive document for participants; it also maximizes investigator flexibility. We also suggest mechanisms to return restricted information to participants