1,760 research outputs found

    Informed choice and public health screening for children: the case of blood spot screening

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    Objective: To examine parents' and health professionals' views on informed choice in newborn blood spot screening, and assess information and communication needs. Design and participants: A qualitative study involving semi-structured telephone interviews and focus groups with 47 parents of children who were either found to be affected or unaffected by the screened conditions, and 35 health professionals with differing roles in newborn blood spot screening programmes across the UK. Results and conclusions: Parents and health professionals recognize a tension between informed choice in newborn blood spot screening and public health screening for children. Some propose resolving this tension with more information and better communication, and some with rigorous dissent procedures. This paper argues that neither extensive parent information, nor a signed dissent model adequately address this tension. Instead, clear, brief and accurate parent information and effective communication between health professionals and parents, which take into account parents' information needs, are required, if informed choice and public health screening for children are to coexist successfully

    Survey of information resources on newborn blood spot screening for parents and health professionals: a systematic review

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    Using Web‐based support for campus‐based open learning: Lessons from a study in dental public health

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    There has been much written about the use of the Web in higher education, much of which advocates its use as an effective way of supporting learning, particularly in terms of the desirability of features such as flexibility and the value of online discussions. In this paper, a case study is described which calls some of this received wisdom into question. The study also explores wider issues of curriculum design, particularly in terms of the role of assessment and of self‐assessment, both of which played a crucial role in the course. Unlike many studies, then, the purpose of this paper is not to demonstrate the success of a particular approach or to advocate particular forms of practice, but instead to highlight the shortcomings of existing guidelines for curriculum development in this area. This suggests that further inquiry into this form of education is required — and in particular, inquiry that pays detailed attention to the backgrounds of learners, and involves close study of their experiences

    The storage and use of newborn babies' blood spot cards: a pubic consultation

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