Talassemi i Sverige – Behandlingsmål och uppföljning varierar kraftigt.

A survey of transfusion-dependent thalassaemia was conducted to study epidemiology, treatment and follow-up routines as a basis for future discussions. Questionnaires were sent to 97 clinics in Sweden. Responses were submitted by 86 of the clinics, 21 of which cared for 32 patients (18 children, 14 adults; i.e.only one or a few patients per hospital). Ten of those 32 (33 procent) patients were born in Sweden. Children were given transfusions more frequently and had higher mean haemoglobin. Iron overload was treated with deferoxamine in 84 procent of the patients and with deferiprone in 44 procent. The mean ferritin concentration was 1670 g/l, although 34 procent (11/32) had levels > 2000 g/l. Follow-up monitoring of iron overload varied considerably, and ferritin analysis was the only routine examination in 28 procent of the patients. Furthermore, 47 procent had no regular follow-up evaluations of endocrine organ function

Does "The Media" Have a Future?

Media-related practices have so long been configured in a particular one-to-many pattern that the mass communication paradigm has seemed automatic as both frame for research and fact of social life. The paradigm is summed up in the English term ‘ the media’. But what if the very idea of ‘the media’ is also imploding, as the interfaces we call media are transformed? Does the implosion of ‘the media’ generate a crisis of appearances for government and other institutions? Three dynamics are considered here — technological, social and political — that are potentially undermining our idea of ‘the media’ as a privileged site for accessing a common world. The article concludes that, instead of collapsing, the social construction of ‘the media’ will become a site of intensified struggle for competing forces: market-based fragmentation vs continued pressures of centralization that draw on new media-related myths and ritual