Same Old New Normal: The Ableist Fallacy of “Post-Pandemic” Work

The ongoing Covid-19 pandemic has catalyzed long-needed changes in accessibility and flexibility for work tasks. Disabled and chronically ill people have often experienced unprecedented inclusion during this time. As someone who is both disabled and chronically ill, I have experienced this firsthand. My work as a medical educator, public health program evaluator, and community advocate has been more accessible in recent months than at any prior time. As the pandemic escalated in early 2020, people readily embraced a “new normal” that would allow them to sustain their own livelihoods while staying as safe as possible. Yet even as Covid-19 cases increase sharply both locally and nationally with the spread of the Delta virus variant, many abled people from both my institution and others increasingly demand a return to pre-pandemic practices. The “normal” state for which abled individuals ardently long violates the basic human rights of disabled and chronically ill people. This desire for “normalcy” is fueled by false notions of the pandemic being over. It remains preferred by many for the sake of their own comfort—even though sustaining the inclusive approaches to collaboration introduced during the pandemic often requires little effort and offers advantages for abled people as well. This experiential piece describes ableist implications of seeking “post-pandemic” work environments—and how these constitute “generic processes” in the reproduction of ableism—using both oral history from the author and emerging literature from fellow scholars. In response, it recommends inclusive strategies for anti-ableist work collaboration that achieve justice in accessibility while fostering a welcome sense of normalcy for all

Coming Full Circle: Reflections and Inspirations from a Cystic Fibrosis Patient Scientist Panel

Care for many progressive chronic diseases continues to improve, allowing patients to survive and thrive for longer periods of time1. People living with such conditions may now find themselves able to achieve long-term goals in education and career development2. Many people now occupy the dual roles of scientist and patient3. This commentary article synthesizes experiences of scientists and advocates with the progressive genetic disease cystic fibrosis (CF) who collaborated on a career development session for the Cystic Fibrosis Foundation’s inaugural ResearchCon event in 2019. It explores how such collaborations affirm and transform individual perspectives on patient science and its importance in broader scientific research agenda setting. We first share our own individual insights about the experience and impact of the ResearchCon panel session before progressing to discussion and future directions centering the shared insights from one another’s reflections