An official American thoracic society workshop report: Translational research in rare respiratory diseases

Rare respiratory diseases (RRDs) are a heterogeneous group of disorders that collectively represent a significant health care burden. In recent years, strong advocacy and policy initiatives have led to advances in the implementation of research and clinical care for rare diseases. The development of specialized centers and research networks has facilitated support for affected individuals as well as emerging programs in basic, translational, and clinical research. In selected RRDs, subsequent gains in knowledge have informed the development of targeted therapies and effective diagnostic tests, but many gaps persist. There was therefore a desire to identify the elements contributing to an effective translational research program in RRDs. To this end, a workshop was convened in October 2015 with a focus on the implementation of effective transnational research networks and collaborations aimed at developing novel diagnostic and therapeutic tools. Key elements included an emphasis on molecular pathogenesis, the continuing engagement of patient advocacy groups and policy makers, the effective use of preclinical models in the translational research pipeline, and the detailed phenotyping of patient cohorts. During the course of the workshop, current logistical and knowledge gapswere identified, and new solutions or opportunities were highlighted

Activité des navires de pêche 2017 : quartier maritime Marseille

Ce document est réalisé dans le cadre du projet « Système d'Informations Halieutiques » (SIH) de l'Ifremer, qui constitue le réseau d'observation des ressources halieutiques et des usages associés. Ce projet s'inscrit dans la mission de service d'intérêt public de l'Ifremer consistant à « connaître, évaluer et mettre en valeur les ressources des océans et permettre leur exploitation durable ». Outre la collecte des données pertinentes permettant l'analyse du secteur des pêches, le SIH a en charge l'élaboration d'indicateurs sur les flottilles de pêche et leur restitution sous forme de synthèses aux différents acteurs de la filière pêche (depuis la recherche jusqu'aux professionnels et gestionnaires) et du grand public