Negotiating serious illness : understanding young women's experiences through Photovoice

Although serious illness is often associated with aging in contemporary society, increasing numbers of young adults are being diagnosed with a variety of serious illnesses. In order to learn more about what it is like to be seriously ill during young adulthood, I completed a qualitative study with ten young women who had recently been affected by a life-threatening or chronic illness. The research was informed by a theoretical approach based on social constructionist and phenomenological principles that recognize that physiological processes such as illness are socially mediated and given meaning within a certain socio-cultural context. Thus,the life course and its corresponding stages are not universal or biologically determined, but rather are social constructions based on socio-cultural factors and the meanings given to certain biological events. This research involved participants between the ages of 20 and 37 from around Saskatchewan who had been affected by a serious illness within the previous three years. The methodological approach that I utilized was interpretive and drew upon phenomenological, feminist, and participatory visual approaches to qualitative research. The young women participated in phenomenological interviews and a photovoice project that explored their ‘lived experiences’ of serious illness and the specific issues that they faced because of illness. I analyzed the data thematically, incorporating phenomenological concepts of embodiment, temporality, and relationality. Although the interview and photographic data highlighted a range of experiences, the data highlighted several similarities among participants. Foremost, the data revealed that serious illness was highly disruptive for the young women; specifically, participants were required to negotiate disruptions to their sense of embodiment, everyday lives, expectations for the future, and social relationships. Ultimately, serious illness brought about embodied and social experiences that conflicted with how participants had previously envisioned young adulthood and their life course. As such, their experiences of illness had profound implications for their self identity and brought about a complex process of trying to make sense of illness. Based on these findings, I conclude that the young women experienced and made sense of illness within the context of socio-cultural expectations related to age and the life course, as well as gender. I also identify the implications of this research for health care and support services aimed at this population

Mothers and daughters' experiences of breast cancer : family roles, responsibilities, and relationships

Existing research suggests that illness can have profound implications for the family. The purpose of this thesis is to explore mothers and daughters’ experiences of the mothers’ breast cancer in order to determine how their lives were affected by the illness. In particular, I focus on shifts that occurred in their family roles, responsibilities, and relationships. Twelve qualitative interviews were performed with four mother-daughter dyads. Each mother and daughter participated in an initial interview together, as well as a separate follow-up interview. Interview data was analyzed thematically using a blended feminist-interpretive approach. The major themes emerging from the analysis pertained to: shifts in family roles and responsibilities, coping with breast cancer, and growth in family relationships. These themes identify specific aspects of mothers and daughters’ lives that were affected by breast cancer. Specifically, the findings contribute to the overarching theme that mothers and daughters experienced “biographical disruption” as a result of the mothers’ breast cancer, in that the illness required the women to re-assess their everyday lives and expectations for the future. However, the range of experiences described by the mothers and daughters suggest that the degree to which biographical disruption occurred varied depending on the extent to which their lives were altered by breast cancer. Therefore, I conclude that mothers and daughters experienced varying degrees of biographical disruption as a result of the mothers’ breast cancer. This conclusion indicates that the breast cancer diagnosis has an array of significant implications for mothers and daughters, some of which continue well beyond the completion of acute care. Recognizing that mothers and daughters’ family roles, responsibilities, and relationships were affected to some extent by the breast cancer experience will help to improve the types of support offered to women in the future

“I Just Don't Think There's any other Image that Tells the Story like [This] Picture Does”: Researcher and Participant Reflections on the Use of Participant-Employed Photography in Social Research

The incorporation of visual forms of expression has become common in qualitative research over the past two decades, with participant-employed photography being most prevalent. Visual methods such as photovoice have been used in community-based studies and with individuals to explore their lived experiences, particularly because of their participatory nature. Despite widespread support for visual approaches in existing research, there has been insufficient attention paid to how photography can enhance understanding of the phenomenon under study. Additionally, the existing literature is somewhat bereft of discussion of what individuals think about their participation in studies that incorporate participant-employed photography, or researchers' perspectives of carrying out this type of research. In this article, we describe a photovoice study carried out with young adult women affected by serious illness and provide examples of participants' photographs to illustrate how participant-employed photography can enhance the depth of research data. Specifically, the examples highlight how the photographs enriched participants' verbal descriptions of their lived experiences, which generated a better understanding of their personal embodied realities. We also discuss the young adult women's inclusion of previously taken photographs and reflections on their participation in the study. Finally, we examine the need to consider the intended audience of photographs, and specific ethical and methodological considerations for researchers contemplating the incorporation of participant-employed photography. In doing so, we provide insight into the advantages and challenges of photo-methods, which can inform other researchers contemplating the incorporation of participant-employed photography into social research

Ethical, Practical, and Methodological Considerations for Unobtrusive Qualitative Research About Personal Narratives Shared on the Internet

As Internet research grows in popularity, attention to the ethics of studying online content is crucial to ensuring ethical diligence and appropriateness. Over recent years, ethical guidelines and recommendations have emerged to advise researchers and institutional review boards on best practices. However, these guidelines are sometimes irrelevant, overly rigid, or lack recognition of the contingent nature of ethical decision-making in qualitative research. Furthermore, varied ethical stances and practices are evident in existing literature. This article explores key ethical issues for qualitative research involving online content, with a focus on the unobtrusive study of personal narratives shared via the Internet. Principles of informed consent and confidentiality are examined in depth alongside practical and methodological considerations for unobtrusive qualitative research. This critical exploration contributes to ongoing discussion of ethical conduct of Internet research and promotes ethically aware yet flexible approaches to online qualitative research and creative methodological efforts to overcoming ethical challenges

Preventing type 2 diabetes among Indigenous youth: A systematic review of community-based interventions

ABSTRACTA systematic review was conducted to assess evidence on effectiveness of community-based interventions promoting wellbeing and prevention of type 2 diabetes (T2D) among Indigenous youth. A convergent, segregated, mixed methods approach was used, with six databases and four grey literature sites searched from inception to May 2022. Articles selected for inclusion were about community-based interventions related to T2D prevention with Indigenous youth that evaluated effectiveness or youth experience published in English. Reference lists were also searched for relevant sources. Seven quantitative research articles met the inclusion and quality assessment criteria. No qualitative articles were identified. The results were synthesised through narrative analysis, while meta-analysis was not possible due to heterogenous study designs. Common foci across interventions included promoting physical wellness, improving physical activity and healthy eating patterns, enhancing knowledge, and psychosocial wellness. Interventions deemed effective addressed multiple areas, were school-based, and operated for at least a year. Findings support multi-strategy, community-based interventions implemented over longer periods of time. However, gaps in research and reporting included the extent to which interventions are culturally informed and based on community-driven priorities. Future research should include Indigenous, mixed and qualitative methods and Indigenous-driven measures of success to better understand effectiveness in alignment with Indigenous worldviews