CREATING A EUROPEAN REGISTRY OF PATIENT REGISTRIES – A SERVICE ORIENTED APPROACH

Zdravstveni registri u zemljama Europske unije proizvode velike količine podataka koji nisu međusobno razmjenjivi i koji zbog nedostatka interoperabilnosti ne mogu naći pravi put do korisnika tih podataka – istraživača, stručnjaka i pacijenata. Uz sve na¬vedeno, na podatke iz zdravstvenih registara nerijetko se gleda kao na izolirane otoke informacija što čini pristupanje tim po¬dacima zahtjevnim zadatkom. Predloženo rješenje ovih problema leži u servisnom pristupu zdravstvenim registrima i podacima koji su u njima pohranjeni. Podaci tako izlaze iz okvira registara unutar kojih se prikupljaju i pretvaraju se u unaprijed definirane pakete usluga prema zahtjevima krajnjih korisnika, čija interakcija je omogućena konceptom metaregistra kao kataloga usluga. Jedan takav model servisno orijentiranog metaregistra kao katalog usluga u ovom je članku razmatran kao stvarna mogućnost i potreba. Svrha metaregistra je prikupljanje podataka od pružatelja podataka s jedne strane te dostavljanja unaprijed definira¬ne usluge korisniku usluga. Interoperabilnost postignuta ovim pristupom prelazi tradicionalne probleme razmjene podataka jer barata uslugama namijenjenim krajnjim korisnicima, a ne samim podacima. Na razini Europske unije jedan je takav metaregistar trenutno u fazi izrade, radnog naziva PARENT (Patient Registry Initiative) “Registar svih registara”. Ovaj metaregistar nastojat će ujediniti sve značajne europske registre pacijenata u jednom servisno-orijentiranom modelu.Healthcare registries in European countries are producing a large amount of data that are difficult to share and which, for the lack of interoperability, do not meet the real needs of data users, i.e. various groups of researchers, professionals and patients. Also, data gathered from healthcare registries are usually considered as isolated islands of information, which makes the task of ap¬proaching these data an arduous one. The suggested solution to these problems lies in the service approach to health registries and the data contained within them. Applying the service approach to registries, the healthcare data can escape the narrow con¬fines of health registries in which they reside by transforming them into packages of predefined services in accordance with the end-user needs, which introduces the concept of metadata registries as service catalogues. Such a model of a service-oriented metadata registry as a catalog of services is discussed here as a real possibility and a dire need. The purpose of such a meta¬data registry is the collection of relevant data from the service provider and delivery of a predefined and reusable set of services to the service consumer. Interoperability thus achieved transcends the traditional problems of data exchange because it comes to grips with the services intended for and defined by the end-user, and not relying solely on data as a final deliverable. At the European Union level, such a metadata registry is currently under development, with the working title PARENT (Patient Registry Initiative) ‘Registry of registries’. The mission of this metadata registry is to combine all the relevant European patient registries into such a service-oriented model

Building consensus about eHealth in Slovene primary health care: Delphi study

<p>Abstract</p> <p>Background</p> <p>Slovenia's national eHealth strategy aims to develop an efficient, flexible and modern health care informatics framework that would be comparable to the most successful EU countries. To achieve this goal, the gap between availability and usage of information and communication technology by primary care physicians needs to be reduced.</p> <p>As recent efforts show, consensus on information and communication technology purpose and usage in primary care needs to be established before any national information and communication technology solutions are developed.</p> <p>The aim of this study was to identify the most appropriate measures in implementation of Slovene national eHealth strategy and to suggest an appropriate model for success by using the three round Delphi study.</p> <p>Methods</p> <p>An e-mail based, three-round Delphi study was undertaken to achieve consensus from a selected sample of nationally recognized experts from the fields of primary health care and medical informatics. The aim of this study was to identify the most appropriate measures and key obstacles in implementation of eHealth in Slovene primary health care by using the Delphi study.</p> <p>Results</p> <p>High levels of consensus on the majority of suggested measures were achieved among all study participants, as well as between the subgroups of experts from primary health care and medical informatics. All aims of the three-round Delphi study on eHealth implementation in Slovenian primary health care were achieved.</p> <p>Conclusions</p> <p>The three round decision Delphi process has proven to be effective for developing outcomes, ranking key priorities in primary care eHealth development, and achieving consensus among the most influential experts in that field. This consensus is an important contribution to future national eHealth strategies in the field of primary health care.</p

Adherence factors to paperless primary healthcare: a focus group study

Izhodišča: Informacijsko-komunikacijska tehnologija (IKT) in brezpapirno delo lahko izboljšata obstoječe delovne procese in so pomembna sestavina sodobnega osnovnega zdravstva. Namen študije je bil analizirati stališča zdravstvenega osebja in pacientov glede brezpapirne ambulante in najpogostejše uporabljene informacijskokomunikacijske tehnologije v slovenskem osnovnem zdravstvu