Palliative Sedation in Children and Adolescents: the Repercussion in the Family

Background: Estimative demonstrate about 6% of the 20 million people needing palliative care at the end of their life are less than 15 years old. Despite of that, researchers reported several areas of parent dissatisfaction with care including confusing, inadequate, or uncaring communications with clinicians regarding treatment or prognosis of the child’s end of life. Objective: Here we show that about 90% of the families that have a child or an adolescent passing through a situation that needs Palliative Sedation think that this process was necessary to relieve the suffering of the patient. Results: In several reports, parents of terminally ill children describe their perceptions of uncaring and insufficient communication from health care professionals and link that communication with their own lingering regrets and emotional distress. Conclusion: There is the necessity to better capacity the supportive and care team, in order to diminish guilty and grieve feelings, and to provide courses to the care team that can develop the communication process among them and the family

Influence Of Spirituality In Pediatric Cancer Management: A Systematic Review

Context: Pediatric cancer is a wide challenge for the patients, family and health care team. They must deal with anxiety, distress, and pain. Thereby, to find meaning for this journey, they use different coping strategies, among which, spirituality appears to be a way, providing well-being and hope.Objective: The purpose of this review was to analyze the influence of spirituality in childhood cancer care, involving biopsychosocial aspects of child, family, and health professionals facing cancer.Data Sources: To achieve this goal, a systematic review of literature was conducted via electronic databases Scopus, MEDLINE and PubMed using Medical Subject Headings (MeSH) terms: “spiritualityâ€, “neoplasm†and “pediatricâ€.Study Selection: Through this search it was found 65 articles. After analyzing them by abstract 13 met the eligibility criteria and were entirely read before included in the final sample.Data Extractions: sys Most of the studies stated that spirituality helps pediatric patients and their families to find a positive meaning from cancer experience, turning better the management of child. Besides, health practitioners may be able to facilitate this process working as a multidisciplinary team, providing to patient an unabridged care. Results: In this context, previous studies stated that when health care team respects patient’s spirituality their connection becomes stronger allowing confidence to take place, promoting treatment engagement. Spirituality also revealed to be a psychological support that acts improving life’s quality.Conclusion: So, it is necessary to promote a deep discussion about this topic since graduation, providing humanized care to child with cancer by qualified health practitioners

Bioethics Inserted in Oncologic Palliative Care: a Systematic Review

Introduction: Bioethics emerges in oncologic palliative care from the reflctions of that care at the end of life for cancer patients are usually inadequate because the individuals has little relief of symptoms, adverse reactions to treatment, threats of physical, social and psychological destruction and loss of functions.Material and Findings: Systematic review in MEDLINE, IBECS, LILACS and SciELO from 1 st January, 2006 to 10th January. The searchvwas conducted with the descriptors "CuidadosPaliativos" (DeCS);"Oncologia" (DeCS); "Morte e Morrer" (Keyword); and "Bioética" (DeCS) during the month of December 2013. The literature points out that physicians should not accept something as absolute truth; and to help them in their choices at the moment comes to bioethics, which does not provide ready answers, but, with its pluralistic view, makes us exercise the capacity for reflction in choosing the best conduits for the patient. It is necessary to rescue more widely the value of the care that was in the background before the search for the cure of diseases, which in a broader sense, encompasses human, spiritual and social aspects. In Brazil, the practice of euthanasia or assisted suicide are illegal conduct that typify the crime of murder, however, the suspension of therapeutic effort is not prohibited (SET), extensively comment, orthothanasia.Conclusion: Despite the possible philosophical and ideological differences, it is necessary that health professionals to really take care of severe patients, prove conscious and attentive to the rights of the individual, the real meaning of the concepts of health and disease, issues the lack of therapeutic possibilities, extreme old age and death

Impacts on perspective of death in relatives of pediatric oncology patients: a systematic review

Background: The impacts of the news of a child/adolescent with cancer are devastating for the patient and his family. This study highlights - through a systematic literature review - the main consequences on the pediatric oncology patient’s family, while facing the cancer situation. Methods and Findings: systematic literature review in BVS (Biblioteca Virtual em Saúde) and SciELO (Scientific Eletronic Library Online) from original studies published from January 1st, 2008 to November 30th, 2012 and that report the trajectories of illness and/or disease course of pediatric oncology patients in the family perspective. The following keywords were chosen as elegibility criteria on the search: "child"[MesH]; "cancer†[Keyword]; “Family" [MeSH] and “death†[MesH]. Of the 569 manuscripts found, 22 met all these eligibility criteria. Studies have shown that the difficulties begin when the cancer is diagnosed. The acceptance of the diagnosis by the family, the overspending expenses, stress, fear and anxiety are examples of emotional overloads which caregivers are exposed. It is noticed that the caregiver job is performed by the mother, while the father is responsible for the "economic mainstay''. On this context, the intimate relation with faith arises or intensifies, in the form of acceptance or denial. Conclusion: The cancer treatment in children should not be focused only on the patient but also on the family – the essential indicator for attenuation on patients suffering