14 research outputs found

    Contribution of behavior therapy to dietary treatment in cystic fibrosis: A randomized controlled study with 2-year follow-up

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    Behavioral intervention (BI) was compared to nutrition education (NE) to better understand the contribution of behavior therapy to nutrition management in children with cystic fibrosis (CF). Participants were 7 children between 6 and 12 years of age with weight for age percentiles ranging from the 3rd to the 27th. Families in each condition were seen for 7 sessions and provided the same nutrition information and calorie goals. The BI received training on child behavior management. Caloric intake across meals was evaluated via multiple baseline design. Results indicated that the BI had a greater increase in daily caloric intake (1,036 cal/day) and weight gain (1.42 kg) than the NE (408 cal/day, 0.78 kg). Improved caloric intake was maintained 2 years following treatment

    Transition to Adult IBD Care: A Pilot Multi-Site, Telehealth Hybrid Intervention

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    Objective Transition to adult IBD care continues to be a challenge. Efficacious models of improving transition to adult care in the United States are lacking. We present data from a pilot, prospective, non-randomized, intervention implemented at IBD centers in the Midwest and Southeast United States. Design and Methods Adolescents and young adults (AYAs; 16–20 years) with IBD and their parents completed a 4- to 5-month transition program (1 in-person group session; 4 individual telehealth sessions). Primary outcomes were feasibility (i.e., recruitment, retention, fidelity) and acceptability (i.e., program satisfaction). Secondary outcomes were changes in transition readiness, self-management skill acquisition, perceived readiness to transfer to adult care, and disease knowledge. Results The study exceeded goals for recruitment (target N = 20; actual: 36) and retention (target: 80%; actual: 86.11%). On average, it took participants 20.91 ± 3.15 weeks to complete our 4- to 5-month intervention and there were no deviations from the study protocol. Participant ratings for overall program satisfaction, perceived helpfulness, and program length and format were positive. Increases in transition readiness, t(30) = 8.30, d = 1.49, p \u3c .001, self-management skill acquisition, t(30) = 3.93, d = 0.70, p \u3c .001, and disease knowledge, t(30) = 8.20, d = 1.58, p \u3c .001 were noted. AYA- and parent-perceived transfer readiness also improved (p’s \u3c .05; d’s = 0.76–1.68). Conclusions This article presents feasibility and acceptability data for a 4- to 5-month transition intervention. Improvements in AYA transition readiness, self-management skill acquisition, IBD knowledge, and AYA/parent perceived transfer readiness were also observed
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