16 research outputs found

    Psychological Functioning in Pediatric Patients with Single Ventricle Congenital Heart Disease: A Meta-Analysis and Systematic Review Protocol

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    Mental health is an important yet understudied area of care for patients with congenital heart disease. Through limited studies, it is known that children and adults with congenital heart disease have increased incidence of mental health disorders when compared to their peers [1-3]. Some studies estimate that over half of adult patients with congenital heart disease have significant symptoms of a mood or anxiety disorder [3], although it is very likely that these symptoms are underrecognized. It is also known that in adults with congenital heart disease, depression is responsible for the variability of self-reported health status of patients, including physical functioning [4]. A prior review and meta-analysis of patient with complex congenital heart disease showed an increased risk of internalizing and externalizing behavior problems, however this review was not specific to the single ventricle population [5]. A recent review and meta-analysis of patients with children and adults with single ventricle physiology found worse health-related quality of life outcomes in this population [6], however currently less is known about psychological functioning specifically in the pediatric single ventricle population. The aim of this systematic review is to summarize and meta-analyze the existing literature of psychological outcomes in pediatric single ventricle patients. It is hypothesized that pediatric patients with single ventricle heart disease will have an increased risk of internalizing and externalizing problems as compared to their peers.No funding associated with this projecthttp://deepblue.lib.umich.edu/bitstream/2027.42/167623/3/SVSysRevProposal2021.pdfDescription of SVSysRevProposal2021.pdf : This is a protocol for an evidence sythesis project on Psychological Functioning in Pediatric Patients with Single Ventricle Congenital Heart DiseaseSEL

    National Engineering Education Delivery System (NEEDs)

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    The Synthesis Coalition, supported by the National Science Foundation and industrial partners, is comprised of the following eight educational institutions: California Polytechnic State University at San Luis Obispo, Comell, Hampton, Iowa State, Southern, Stanford, and Tuskegee Universities, and the University of California at Berkeley (1]. The National Engineering Education Delivery System (NEEDS) is an entirely new courseware development and distribution system which will provide Widespread, rapid, electronic access to an almost arbitrarily large number of diverse instructional modules (2-4). Curricular material in the NEEDS database are organized by a diverse range of indices. Links across disciplines are provided in the form of curricular paths though the elements in the database. This year, NEEDS will be available not only to this Coalition but to at engineering schools, both ~~ a library/database and a broad distribution channel for the results of their work in developing new concepts, methods, curricula and tools

    Frequency and Effects of Search Strategy Characteristics on Relevant Article Retrieval in Systematic Reviews

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    Objectives To identify common characteristics of highly effective search strategies for a clinical systematic review topic. Methods Before attending an in-person systematic review workshop, participants asked to draft a reproducible search strategy based on a brief scenario and a research question from a published systematic review related to blood transfusion and radical prostatectomy. Participants are provided with three studies that were included in the published systematic review, but are not given the systematic review itself. The scenario proposes three commonly-requested limits: date range, inclusion of specific outcome, and human studies that participants can choose to apply or not. The submitted strategies are evaluated for reproducibility and effectiveness of retrieval of the 10 studies included in the published systematic review. Strategies were considered ”highly successful” if they returned all 10 included studies. We conducted a thematic analysis on the 14 highly successful strategies to identify common characteristics between them that could guide future searchers. Two studies were disproportionately missed by the other 98 search strategies, and their PubMed records were analyzed to identify what made them particularly challenging to find. We thank the MLA Research Training Institute for its training, support and encouragement to carry out this research. This project was made possible in part by the Institute of Museum and Library Services (RE-95-17- 0025-17). This study is IRB Exempt under HUM00128315.http://deepblue.lib.umich.edu/bitstream/2027.42/177126/1/Townsend_MLA2019_RTIPoster.pdfhttp://deepblue.lib.umich.edu/bitstream/2027.42/177126/2/Townsend_MLA2019_RTIPoster.pptxDescription of Townsend_MLA2019_RTIPoster.pdf : Conference poster in pdf formatDescription of Townsend_MLA2019_RTIPoster.pptx : Conference poster in ppt formatSEL

    Search Strategies for Evaluating the Clinical Utility of Psychosocial Risk Rating Tools in Hematopoietic Cell Transplantation: A Systematic Review

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    Studies have explored the relationship between pre-transplant psychosocial risk as measured by the PACT, TERS, and SIPAT and post-HCT medical and health services utilization outcomes. We conducted a systematic review to: 1) identify all published studies investigating this relationship, 2) synthesize the evidence, and 3) evaluate methodological biases that may be large enough to distort study results.Dr. Randall received research support from the National Cancer Institute institutional training grant T32-CA-236621.http://deepblue.lib.umich.edu/bitstream/2027.42/192663/1/HEMPSYCH Final Search Strategies .txta577889f-9e0e-4ea5-85f2-48e6de4fb990Description of HEMPSYCH Final Search Strategies .txt : Search strategies for "Evaluating the Clinical Utility of Psychosocial Risk Rating Tools in Hematopoietic Cell Transplantation: A Systematic Review"SEL

    Common Barriers to Replicability and Retrieval in Systematic Review Search Strategies

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    Objective: To identify the most common elements of systematic review search strategies that affect the replicability of the search and the comprehensiveness of the retrieval. Methods: Participants from three cohorts of a systematic review-focused workshop were asked to draft a replicable search strategy based on a brief scenario and a research question from a published systematic review. Participants were provided with three studies that were included in the published systematic review, but not the original systematic review. The researchers in the scenario asked for three commonly-requested limits: date range, inclusion of specific outcome, and publication type. Participants were free to choose to apply these limits or none. Submitted strategies were evaluated by two blinded reviewers for replicability, use of search limits, retrieval of the three provided studies, and retrieval of all studies included in the published systematic review. This study received exemption status from the Institutional Review Board.http://deepblue.lib.umich.edu/bitstream/2027.42/177127/1/MLA2018_CapstoneAnalysis_Paper.pdfhttp://deepblue.lib.umich.edu/bitstream/2027.42/177127/2/MLA2018_CapstoneAnalysis_Paper.pptxDescription of MLA2018_CapstoneAnalysis_Paper.pdf : Conference paper in pdf formatDescription of MLA2018_CapstoneAnalysis_Paper.pptx : Conference paper in ppt formatSEL

    A competency framework for librarians involved in systematic reviews

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    Objective: The project identified a set of core competencies for librarians who are involved in systematic reviews. Methods: A team of seven informationists with broad systematic review experience examined existing systematic review standards, conducted a literature search, and used their own expertise to identify core competencies and skills that are necessary to undertake various roles in systematic review projects. Results: The team identified a total of six competencies for librarian involvement in systematic reviews: “Systematic review foundations,” “Process management and communication,” “Research methodology,” “Comprehensive searching,” “Data management,” and “Reporting.” Within each competency are the associated skills and knowledge pieces (indicators). Competence can be measured using an adaptation of Miller’s Pyramid for Clinical Assessment, either through self-assessment or identification of formal assessment instruments. Conclusions: The Systematic Review Competencies Framework provides a standards-based, flexible way for librarians and organizations to identify areas of competence and areas in need of development to build capacity for systematic review integration. The framework can be used to identify or develop appropriate assessment tools and to target skill development opportunities

    Scoping review of transgender and gender diverse older adults’ experiences of health protocol

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    http://deepblue.lib.umich.edu/bitstream/2027.42/167690/1/Trans Aging Review Protocol.docxDescription of Trans Aging Review Protocol.docx : ProtocolSEL

    A Scoping Review of Strategies to Increase Black Enrollment and Retention in Cancer Clinical Trials

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    To address health disparities faced by Black patients with cancer, it is critical that researchers conducting cancer clinical trials (CCTs) equitably recruit and retain Black participants, develop strategies toward this aim, and document associated outcomes. This narrative scoping literature review, as part of a larger study, aimed to identify, describe, and categorize strategies and interventions intended to improve the recruitment and retention of Black participants with breast, lung, prostate, colorectal, or multiple myeloma cancer into CCTs. We conducted comprehensive searches in PubMed, Embase, Cochrane Library, PsycInfo, CINAHL, Scopus, and Web of Science with three main concepts: Black persons, neoplasms, and clinical trial recruitment. The search resulted in 1,506 articles, of which 15 met inclusion criteria. Five main categories of recruitment and retention strategies and interventions were identified based on their specific population focus and type of approach: (1) participant identification, (2) provider awareness/resources, (3) focused research staff interventions, (4) patient and community-focused awareness strategies, and (5) participant-directed resources. Thirteen studies had recruitment acceptance rates of over 30%. Eight studies with acceptance rates of ≥ 50% reported implementing ≥ 5 strategies, with an average use of seven strategies across multiple categories. Five studies with acceptance rates ≥ 50% implemented strategies in ≥ 3 categories. Four studies reported retention rates ≥ 74%. Three studies with reported retention rates ≥ 74% used strategies in ≥ 3 categories, and all included strategies aimed at meeting participant needs beyond the study. Our results show that many efforts that aim to increase the recruitment and retention of Black participants into CCTs have great potential, but the most promising strategies use a multiprong approach
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