Early education and rehabilitation development program in children with West syndrome

Rana intervencija je proces informiranja, savjetovanja, edukacije i podrške djeci u ranoj dobi kod koje je utvrđeno stanje mogućeg odstupanja u razvoju s visokim rizikom za daljnji razvoj, kao i njihovim obiteljima. Ovaj proces obuhvaća i djecu kod koje postoji čimbenik rizika za razvojno odstupanje koje bi kasnije moglo utjecati na njihov daljnji razvoj. Program rane intervencije može se pružati u različitim okruženjima, no naglasak se stavlja na prirodno okruženje djeteta. Pokazalo se da je program rane intervencije najefikasniji ako se s njim počne odmah po utvrđivanju odstupanja ili otkrivanju teškoće u razvoju. Osnovni cilj ovog rada je prikaz edukacijsko–rehabilitacijskog programa usmjerenog poticanju kognitivnih, emocionalnih, socijalnih, motoričkih, komunikacijskih i govornih vještina djece s višestrukim teškoćama u okviru Ranog razvojnog integracijskog programa za dijete s višestrukim teškoćama koji se provodi u Kabinetu za ranu psihomotoričku stimulaciju Centra za rehabilitaciju Edukacijsko-rehabilitacijskog fakulteta Sveučilišta ua Zagrebu. Program se provodio u obitelji blizanki s West sindromom kronološke dobi 2,5 godine uz superviziju Kabineta za ranu psihomotoričku stimulaciju Centra za rehabilitaciju Edukacijsko-rehabilitacijskog fakulteta, kroz akademsku godinu 2010./2011. Rani razvojni integracijski program koji se provodio obuhvaćao je osnovne elemente neurorazvojnog tretmana (NDT), programa senzorne integracije, kognitivne elemente razvoja (Piagetova teorija poticanja kognitivnog razvoja i funkcionalno učenje), Dennisonovu edukinestetičku metodu, komponente govora i jezika, orofacijalnu stimulaciju te podršku obitelji. Za postupke procjene i evaluacije korištena je Münchenska funkcionalna razvojna dijagnostika i Gunzburg test čije komponente se koriste kao varijable ovog istraživanja. Kao metoda obrade podataka korištena je INDIF komponentna analiza stanja ispitanika kroz niz jednako udaljenih vremenskih točaka. Uzimajući u obzir statističke pokazatelje, može se zaključiti da je Rani razvojni integracijski program imao pozitivan utjecaj na razvoj djevojčica. Kako bi u potpunosti mogli razumjeti njihov razvoj treba uzeti u obzir genetsku predispoziciju te okruženje u kojem odrastaju.Early intervention is the process of informing, consulting, training and support to children at early age at which the state of the possible variations in the development of a high risk for further development, as well as their families, is determined. This process includes children at risk factor for developmental deviations that would later have an impact on their future development. Early intervention program can be provided in a variety of environments, but the focus is on the natural environment of the child. It turned out that the program is the most effective if the early intervention began immediately after determining deviations or disclosure of a disability. The main objective of this paper is to present educational and rehabilitation programs, which objective is to foster cognitive, emotional, social, motor, and communication skills of children with multiple disabilities in the early-integration program. The program was conducted in the family with twins with West syndrome chronological, age 2.5 years, under the supervision of the Cabinet in early psychomotoric stimulation of the Rehabilitation Centre for Education and Rehabilitation Sciences, during the academic year 2010-2011. Early developmental integration program, that was implemented, included the basic elements of neuro-developmental treatment (hereinafter: NDT), sensory integration programs, cognitive elements of development (Piaget’s theory of cognitive development and promotion of functional learning), elements of Dennison educational kinesiology, the components of speech and language, orofacial stimulation and support to the family. Procedures for the assessment and evaluation used Munich Developmental Diagnostic and Gunzburg test whose components are used as variables of the study. As a data processing method was used INDIF component analysis through a series of equally distant time points. Taking into account the statistical data, it can be concluded that the early developmental integration program had a positive impact on the development of girls. In order fully to be able to understand their development needs to take into account the genetic predisposition and the environment in which they grow up