Changes in the marine environment: the Belgian part of the North Sea revisited

Sustainable development requires the quantification of human impacts, against the seafloor’s ecological value. Recent impact studies have shown localised effects only, though indications of a longer-term and broader-scale degradation of the seafloor exist. This is due possibly to cumulative anthropogenically-induced effects, but the natural evolution and the response of the seafloor due to sea-level rise are poorly known. Such evolution needs to be disentangled against the impact of dredging, aggregate extraction, fisheries and beach replenishment.Naturally-, as well as anthropogenically-induced sediment dynamics are studied in detail along the Belgian part of the North Sea [Van Lancker et al., 2008]. State-of-the-art observations/sampling, advanced modelling, as well as analyses of long-term datasets on sediment nature and dynamics, geomorphology and macrobenthos are carried out. Additionally, integrated sand/mud models and dynamically coupled current/wave models are being developed, with boundary conditions generated from models focusing on the Scheldt estuary and on the coast. A historic reference framework has been set-up, based on a sediment and macrobenthos dataset of 100 yrs ago [Gilson dataset, van Loen & Houziaux, 2002]. In representative areas, erosion/sedimentation patterns and rates are quantified and balanced against the occurrence and intensity of human activities.Results are integrated in the view of developing criteria, monitoring strategies and recommendations for a more sustainable exploitation/management of the EEZ. Particularly, the allocation of efficient dumping grounds, large-scale aggregate extraction and sustainable coastal protection schemes are being considered, also in the perspective of future sea-level rise scenarios.REFERENCESVan Lancker, V., Du Four, I., Fettweis, M., Van den Eynde, D., Devolder, M., Francken, F., Monbaliu, J., Verwaest, T., Janssens, J., Degraer, S., Houziaux, J.-S., Vandenberghe, N., Goffin, A., 2008. QUantification of Erosion/Sedimentation patterns to Trace the natural versus anthropogenic sediment dynamics (QUEST4D). Annual Scientific Report Year 1. Science for Sustainable Development. Belgian Science Policy: Brussels, Belgium. 27 pp

Flemish network on rare connective tissue diseases (CTD): patient pathways in systemic sclerosis. First steps taken.

peer reviewedDespite the low prevalence of each rare disease, the total burden is high. Patients with rare diseases encounter numerous barriers, including delayed diagnosis and limited access to high-quality treatments. In order to tackle these challenges, the European Commission launched the European Reference Networks (ERNs), cross-border networks of healthcare providers and patients representatives. In parallel, the aims and structure of these ERNs were translated at the federal and regional levels, resulting in the creation of the Flemish Network of Rare Diseases. In line with the mission of the ERNs and to ensure equal access to care, we describe as first patient pathways for systemic sclerosis (SSc), as a pilot model for other rare connective and musculoskeletal diseases. Consensus was reached on following key messages: 1. Patients with SSc should have multidisciplinary clinical and investigational evaluations in a tertiary reference expert centre at baseline, and subsequently every three to 5 years. Intermediately, a yearly clinical evaluation should be provided in the reference centre, whilst SSc technical evaluations are permissionably executed in a centre that follows SSc-specific clinical practice guidelines. In between, monitoring can take place in secondary care units, under the condition that qualitative examinations and care including interactive multidisciplinary consultations can be provided. 2. Patients with early diffuse cutaneous SSc, (progressive) interstitial lung disease and/or pulmonary arterial hypertension should undergo regular evaluations in specialised tertiary care reference institutions. 3. Monitoring of patients with progressive interstitial lung disease and/or pulmonary (arterial) hypertension will be done in agreement with experts of ERN LUNG