Randomized controlled trial of SPIRIT: An effective approach to preparing African-American dialysis patients and families for end of life

This randomized controlled trial tested an intervention, Sharing Patients’ Illness Representations to Increase Trust (SPIRIT), designed to enhance communication regarding end-of-life care between African Americans with end-stage renal disease (ESRD) and their chosen surrogate decision makers (N = 58 dyads). We used surveys and semi-structured interviews to determine the feasibility, acceptability, and preliminary effects of SPIRIT on patient and surrogate outcomes at 1 week and 3 months post-intervention. We also evaluated patients’ deaths and surrogates’ end-of-life decision making to assess surrogates’ perceptions of benefits and limitations of the SPIRIT while facing end-of-life decisions. We found that SPIRIT promoted communication between patients and their surrogates and was effective and well received by the participants

Perspectives from Cambridge University Press

Featuring four presentations from Cambridge University(CUP): "Researchers' perspectives on the purpose and value of the monograph: Survey results 2019" (Ben Denne); "Definitions of open?" (Matt Day); "Open Access monograph publishing: Benefits and challenges" (Helen Barton); "Sharing Knoweldge is Cool: OA experiments in context" (Chris Harrison).This symposium was supported by the Arcadia Fund, a charitable fund of Lisbet Rausing and Peter Baldwi