How Do Individuals with Cerebral Palsy and their Families Prefer to Receive and Use Evidence-Based Information to Individualize Services to Optimize Outcomes?

The main objectives of this study were to: (1) describe the format in which children with cerebral palsy (CP) and their parents prefer to receive information pertaining to development; (2) understand how children with CP and their parents intend to use this information; and (3) gain insight on how children with CP wish to be represented in the information in terms of being both comprehensive and respectful. Ten children with CP and their parent(s) or guardian(s) participated. Semi-structured interviews were conducted and analyzed using constant comparative analysis. Eight themes were created related to the type and format of information preferred by children with CP and their parents. The results of this study provide a next step for disseminating the individualized information obtained in the OnTrack study, as well as for narrowing the gaps that currently exist in the literature related to information preferences of children with CP and their families