255 research outputs found

    Opportunity for All: How the American Public Benefits From Internet Access at U.S. Libraries

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    Examines the use of free computer and Internet access in public libraries, by income level, age, race/ethnicity, and online activity. Explores libraries' role as a community resource for social media, education, employment, e-government, and other areas

    LD4PE: A Competency-based Guide to Linked Data Principles and Practices

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    The IMLS-funded Linked Data for Professional Education (LD4PE) project has developed a competency-based prototype referatory of Learning Resources for teaching and learning practices in the design, implementation, and management of Linked Data. This report summarizes the work of the project in developing: 1) an RDF-modeled “Competency Index for Linked Data” (Index) based on the Achievements Standards Network Description Language (ASN-DL) for describing formally promulgated competencies and benchmarks; 2) an openly available, web-based tool set to support the management of the Index; the generation of RDF metadata about Learning Resources; the packaging and arrangement of selected Learning Resources by users in “Saved Sets”; and the creation of learning trajectory maps expressing curricular structures or personal learning journeys superimposed over the competency framework through the integration of these elements as WordPress custom posts and taxonomies on the LD4PE website; 3) a set of cataloged Learning Resources that have been mapped to the competencies and benchmarks of the Index to support competency-based resource discovery by teachers, trainers and learners; 4) the LD4PE project website (http://explore.dublincore.net), which will be managed by the Dublin Core Metadata Initiative (DCMI) as part of its educational agenda; and 5) a set of Best Practices describing the infrastructure and policies developed for the project that others can reuse in mapping future knowledge domains in a similar manner

    Race Differences in Initial Presentation, Early Treatment, and 1-year Outcomes of Pediatric CrohnĘĽs Disease: Results from the ImproveCareNow Network

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    BACKGROUND: Racially disparate care has been shown to contribute to suboptimal health care outcomes for minorities. Using the ImproveCareNow network, we investigated differences in management and outcomes of pediatric patients with Crohn's disease at diagnosis and 1-year postdiagnosis. METHODS: ImproveCareNow is a learning health network for pediatric inflammatory bowel disease. It contains prospective, longitudinal data from outpatient encounters. This retrospective study included all patients with Crohn's disease ≤21 years, September 2006 to October 2014, with the first recorded encounter ≤90 days from date of diagnosis and an encounter 1 year ±60 days. We examined the effect of race on remission rate and treatment at diagnosis and 1 year from diagnosis using t-tests, Wilcoxon rank-sum tests, χ statistic, and Fisher's exact tests, where appropriate, followed by univariate regression models. RESULTS: Nine hundred seventy-six patients (Black = 118 (12%), White = 858 (88%), mean age = 13 years, 63% male) from 39 sites were included. Black children had a higher percentage of Medicaid insurance (44% versus 11%, P < 0.001). At diagnosis, Black children had more active disease according to physician global assessment (P = 0.027), but not by short Pediatric Crohn's Disease Activity Index (P = 0.67). Race differences in treatment were not identified. Black children had lower hematocrit (34.8 versus 36.7, P < 0.001) and albumin levels (3.6 versus 3.9, P = 0.001). At 1 year, Black children had more active disease according to physician global assessment (P = 0.016), but not by short Pediatric Crohn's Disease Activity Index (P = 0.06). CONCLUSIONS: Black children with Crohn's disease may have more severe disease than White children based on physician global assessment. Neither disease phenotype differences at diagnosis nor treatment differences at 1-year follow-up were identified

    Geo-Referenced, Abundance Calibrated Ocean Distribution of Chinook Salmon (Oncorhynchus tshawytscha) Stocks across the West Coast of North America

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    Understanding seasonal migration and localized persistence of populations is critical for effective species harvest and conservation management. Pacific salmon (genus Oncorhynchus) forecasting models predict stock composition, abundance, and distribution during annual assessments of proposed fisheries impacts. Most models, however, fail to account for the influence of biophysical factors on year-to-year fluctuations in migratory distributions and stock-specific survival. In this study, the ocean distribution and relative abundance of Chinook salmon (O. tshawytscha) stocks encountered in the California Current large marine ecosystem, U.S.A were inferred using catch-per-unit effort (CPUE) fisheries and genetic stock identification data. In contrast to stock distributions estimated through coded-wire-tag recoveries (typically limited to hatchery salmon), stock-specific CPUE provides information for both wild and hatchery fish. Furthermore, in contrast to stock composition results, the stock-specific CPUE metric is independent of other stocks and is easily interpreted over multiple temporal or spatial scales. Tests for correlations between stock-specific CPUE and stock composition estimates revealed these measures diverged once proportional contributions of locally rare stocks were excluded from data sets. A novel aspect of this study was collection of data both in areas closed to commercial fisheries and during normal, open commercial fisheries. Because fishing fleet efficiency influences catch rates, we tested whether CPUE differed between closed area (non-retention) and open area (retention) data sets. A weak effect was indicated for some, but not all, analyzed cases. Novel visualizations produced from stock-specific CPUE-based ocean abundance facilitates consideration of how highly refined, spatial and genetic information could be incorporated in ocean fisheries management systems and for investigations of biogeographic factors that influence migratory distributions of fish

    Racial Disparities in Readmission, Complications, and Procedures in Children with CrohnĘĽs Disease:

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    Racial disparities in care and outcomes contribute to mortality and morbidity in children however the role in pediatric Crohn’s disease (CD) is unclear. In this study, we compared cohorts of Black and White children with CD to determine the extent race is associated with differences in readmissions, complications, and procedures among hospitalizations in the United States

    Assessment of Sex Differences for Treatment, Procedures, Complications, and Associated Conditions Among Adolescents Hospitalized with CrohnĘĽs Disease:

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    Sex differences among adults in healthcare treatment and outcomes have been reported, however, there is a paucity of literature regarding pediatric populations, particularly adolescents with Crohn’s disease (CD). The objective was to identify whether sex differences exist with respect to complications, procedures, and medication usage (corticosteroids, biologic agents, and total parenteral nutrition (TPN)) among hospitalized adolescents with CD

    Use of Genetic Stock Identification Data for Comparison of the Ocean Spatial Distribution, Size at Age, and Fishery Exposure of an Untagged Stock and Its Indicator: California Coastal versus Klamath River Chinook Salmon

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    Managing weak stocks in mixed-stock fisheries often relies on proxies derived from data-rich indicator stocks. For example, full cohort reconstruction of tagged Klamath River fall run Chinook salmon (Oncorhynchus tshawytscha) of northern California, USA, enables the use of detailed models to inform management. Information gained from this stock is also used in the management of the untagged, threatened California Coastal Chinook (CCC) salmon stock, by capping Klamath harvest rates. To evaluate use of this proxy, we used genetic stock identification (GSI) data to compare the two stocks\u27 size-at-age and ocean distribution, two key factors influencing fishery exposure. We developed methods to account for both sampling and genetic assignment uncertainty in catch estimates. We found that, in 2010, the stocks were similar in size-at-age early in the year (age-3 and age-4), but CCC fish were larger later in the year. The stocks appeared similarly distributed early in the year (2010), but more concentrated near their respective source rivers later in the year (2010 and 2011). If these results are representative, relative fishery impacts on the two stocks might scale similarly early in the year but management changes later in the year might have differing impacts on the two stocks

    Family-Focused Public Health: Supporting Homes and Families in Policy and Practice

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    Life expectancy in the US is on the decline. Mental health issues associated with opioid abuse and suicide have been implicated for this decline necessitating new approaches and procedures. While Public Health 3.0 provides a call to action for stakeholders to work closely together to address such complex problems as these, less attention has been given to engaging and supporting the most important stakeholders and primary producers of health within the US: families and households. The idea that health begins at home is discussed from the perspective of primary, secondary, and tertiary prevention levels. Primary prevention where research provides evidence for the role of the family in healthy child development. Secondary and tertiary prevention where research offers evidence for the role of the family in caregiving. Despite this evidence, greater focus and attention must be placed on the family at all prevention levels as an often overlooked setting of public health practice and level of influence. Prevention across all levels is enhanced as public health practitioners think family when designing and implementing public health policy. Four family impact principles are presented to help guide planning and implementation decisions to nourish family engagement

    Feasibility and Validity of the Pediatric Ulcerative Colitis Activity Index in Routine Clinical Practice

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    The Pediatric Ulcerative Colitis Activity Index (PUCAI) is a non-invasive disease activity index developed as a clinical trial endpoint. More recently, practice guidelines have recommended the use of PUCAI in routine clinical care. We therefore sought to evaluate the feasibility, validity and responsiveness of PUCAI in a large, diverse collection of pediatric gastroenterology practices
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