37 research outputs found

    Adjustment to colostomy: stoma acceptance, stoma care self-efficacy and interpersonal relationships

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    ‘The definitive version is available at www.blackwell-synergy.com.’ Copyright Blackwell Publishing. DOI: 10.1111/j.1365-2648.2007.04446.xThis paper is a report of a study to examine adjustment and its relationship with stoma acceptance and social interaction, and the link between stoma care self-efficacy and adjustment in the presence of acceptance and social interactions.Peer reviewe

    Linking Survey and Administrative Records: Mechanisms of Consent

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    Survey records are increasingly being linked to administrative databases to enhance the survey data and increase research opportunities for data users. A necessary prerequisite to linking survey and administrative records is obtaining informed consent from respondents. Obtaining consent from all respondents is a difficult challenge and one that faces significant resistance. Consequently, data linkage consent rates vary widely from study-to-study. Several studies have found significant differences between consenters and non-consenters on socio-demographic variables, but no study has investigated the underlying mechanisms of consent from a theory-driven perspective. In this study, we describe and test several hypotheses related to respondents’ willingness to consent to an earnings and benefit data linkage request based on mechanisms related to financial uncertainty, privacy concerns, resistance towards the survey interview, level of attentiveness during the interview, the respondents’ preexisting relationship with the administrative data agency, and matching respondents and interviewers on observable characteristics. The results point to several implications for survey practice and suggestions for future research

    Diversity and Systematics of Limbless Skinks (Anomalopus) from Eastern Australia and the Skeletal Changes that Accompany the Substrate Swimming Body Form

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    Published: 27 September 2021Limb-reduced and limbless scincid lizards pose problems in untangling their relationships because of a strong tendency toward convergent evolution in which functional characters mask phylogenetic history. Their often small size makes cranial characters difficult to study, and collections of such species are often small and patchy because of their cryptic behavior. One such genus, Anomalopus (Sphenomorphinae), currently includes seven species of reduce-limbed and limbless skinks that occur in tropical and subtropical habitats in eastern Australia. The discovery of previously unreported populations of limbless skinks assignable to Anomalopus has prompted our revision of the morphology and systematics of this genus. We report new DNA sequence data and new morphological data by using X-ray micro-computed tomography scanning that corroborate published molecular data on sphenomorphine phylogeny, leading us to propose a new generic arrangement that recognizes the species of Anomalopus as belonging to three genera. The newly discovered populations represent two new species currently known from only three small and disjunct areas. We review the osteology of the three genera of the former Anomalopus, finding new characters and variable patterns of interspecific and interclade variation. The same morphological characters are modified in every limb-reduced sphenomorphine clade, but to differing degrees and in different combinations in each.Mark N. Hutchinson, Patrick Couper, Andrew Amey, Jessica Worthington Wilme

    Diabetic retinopathy and the risk of coronary heart disease: The atherosclerosis risk in communities study

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    10.2337/dc07-0264Diabetes Care3071742-1746DICA

    Apolipoprotein E gene polymorphisms and retinal vascular signs: The Atherosclerosis Risk In Communities (ARIC) Study

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    10.1001/archopht.125.6.813Archives of Ophthalmology1256813-818AROP

    The epidemiology and burden of childhood chronic pancreatitis in South Australia

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    Available online 3 December 2021OBJECTIVE: To assess longitudinal, population-based data regarding the prevalence and impact of chronic pancreatitis on children. STUDY DESIGN: Administrative data linkage was used to ascertain an index cohort consisting of all individuals who had an initial diagnosis of chronic pancreatitis before the age of 19 years in the South Australian public hospital system between June 2000 and June 2019. Age- and sex-matched controls were drawn from the general population of South Australia, children with type 1 diabetes, and children with type 2 diabetes Main outcomes and measures included: hospital visits, days in hospital, emergency department visits, ICU admissions, education comparators, incidence, and prevalence estimates. RESULTS: A total of 73 incident cases were identified. Crude prevalence and incidence of paediatric chronic pancreatitis were estimated at 6·8/100,000 and 0·98/100,000 per annum respectively. Of the index cohort, 24 (32.8%) cases of paediatric chronic pancreatitis identified as Aboriginal and/or Torres Strait Islander people. Children with chronic pancreatitis averaged 11-fold more hospital visits, 5-fold more emergency department visits, 9-fold more ICU admissions, spent 10-fold more days in hospital, and had 2-fold higher rates of absence from school than matched general population controls (all P <0.001). Children with chronic pancreatitis similarly utilized substantially more health resources than children with type 1 or 2 diabetes. CONCLUSIONS: Paediatric patients with chronic pancreatitis consume a high volume of public health services and are significantly impacted in their ability to engage in education.Tristan J.Bampton, Richard Couper, Sanjeev Khurana, David Moore, Alex Brown, Chris Drogemuller ... et al
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