3 research outputs found
A Scoping Review of Health Research with Racially/Ethnically Minoritized Adults with Intellectual and Developmental Disabilities
Living with intersectional identities, having a disability, and being a member of a racial or ethnic minoritized group in the U.S., contributes to marginalization that may result in health disparities and health inequities. The purpose of this scoping review is to describe health research regarding adult racial/ethnic minoritized individuals in the U.S with intellectual and developmental disabilities (I/DD). Eight electronic databases were searched to identify literature on the topic published since 2000. Of the 5,229 records, 35 articles were included in the review. Eligible studies included research conducted in the U.S., published in English, and research focused on adults with I/DD with race and/or ethnicity information. The 35 articles included racial/ethnic minoritized individuals who were Black, Latinx/Hispanic, American Indian, and Asian. Twenty-nine of the 35 articles identified health disparities experienced by adults with I/DD from racial/ethnic minoritized groups. Many health disparities were demonstrated in the articles, where adult racial/ ethnic minoritized individuals with I/DD fared worse compared to White adults with I/DD. Additionally, four articles describe differences in health experiences by those from racial or ethnic minoritized backgrounds. Results of this scoping review highlight the need for research that incorporates intentional inclusion of racial/ethnic minoritized people with I/DD and include novel methodologies that allow for the contributions of historically marginalized voices. Future research with an intersectionality approach is recommended to promote equity
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Prevention of Alcohol Exposed Pregnancies and Fetal Alcohol Spectrum Disorders and Conceptualizing the Adaptation Process for Health Promotion Programs in Urban American Indian/Alaska Native Communities
Background: This dissertation project builds on an existing partnership and alcohol exposed pregnancies (AEPs) and Fetal Alcohol Spectrum Disorders (FASD) prevention project between the Tucson Indian Center (TIC) and Mel and Enid Zuckerman College of Public Health (MEZCOPH). The TIC provides social services, health and wellness services, and health fairs and cultural celebrations for urban American Indian and Alaska Natives (AI/AN). Reducing the risk of AEPs and FASD among American Indian, Alaska Natives and Aboriginal People of Canada (AI/AN/APC) is a public health priority. AI/AN/APC women report higher rates of alcohol consumption during pregnancy, and AI/AN infants have high rates of FASDs. Effects of AEPs and FASDs can include physical, mental, behavioral, and learning disabilities with possible lifelong implications. This dissertation's overall objective is to document the broad and local approaches employed to adapt health promotion and prevention programs for urban AI/AN populations, with an emphasis on AEPs and FASD. Methods: This dissertation is composed of three parts: 1) a scoping review to explore the representation of adapted AEPs and FASD programs in AI/AN/APC literature; 2) an examination of factors associated with AEPs in an urban AI/AN women; and 3) utilizing a consensus panel and follow-up interviews to define adaptation and document the TICs adaptation process. Result: The scoping review yielded a total of 1,287 peer-reviewed articles. After a full-text review 15 articles met the inclusion criteria and were selected for a full article review. The grey literature search identified 11 AEP and FASD programs not published in the peer-reviewed literature. Data were analyzed on a sample of 119 women urban AI/AN women. Overall, the prevalence rates of factors associated with AEPs among the sample was were relatively low. The consensus panel defined adaptation, documented their adaptation process, identified best practices for adapting health promotion programs, and lessons learned from working with TIC. Conclusions: This dissertation identified a gap in the literature about AEPs and FASD programs among AI/AN/APC, the prevention programs used to address these issues and the perspective of how those who administer culturally relevant programs adapt these programs the meet the needs of AI/AN/APC communities. Data sources that provide information about the health status of urban AI/AN is lacking. This dissertation also identified the prevalence rates of factors that are associated with AEPs among a specific urban AI /AN community. Lastly, this dissertation documented the program adaptation process of a specific AI/AN-serving organization. These findings advance intervention science to understand how prevention programs are adapted for an urban, multitribal AI/AN population.Release after 12/02/202
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A Scoping Review of Health Research with Racially/Ethnically Minoritized Adults with Intellectual and Developmental Disabilities (IDD)
Among U.S. adults with disabilities, the prevalence of disability varies by race and ethnicity, with White adults reporting less disability than historically marginalized racial/ethnic groups. Living with intersectional identities, having a disability, and being a member of a racial or ethnic minority group creates marginalization that may contribute to health disparities. Previous research indicates there is limited intersectional disability research conducted in the U.S., as the prevailing approach focuses on disability broadly. Even less is understood about adults with intellectual and developmental disabilities (IDD) living with intersectional identities. The purpose of this scoping literature review is to describe health research regarding adult racial/ethnic minoritized individuals with IDD in the U.S. Nine databases were used for the search. Search terms included those related to racial/ethnic status, IDD diagnosis, and health. The review resulted in 35 articles meeting the inclusion criteria. Thirty-three of the 35 articles identified disparities experienced by adults with IDD from racial/ethnic minoritized groups. Results highlight the lack of research focused on racially/ethnically minoritized adults with IDD. The results of this scoping review indicate that researchers must be intentional about the inclusion of racial/ethnic minoritized groups with IDD and include novel methodologies that enhance historically marginalized voices. Researchers should incorporate existing data to highlight service gaps that influence poor health outcomes among minoritized individuals with IDD. Research highlighting service gaps may provide critical information for practitioners working to address health needs for special populations with IDD.This item from the UA Faculty Publications collection is made available by the University of Arizona with support from the University of Arizona Libraries. If you have questions, please contact us at [email protected]