5 research outputs found

    Gender and Sex Development Program at Lurie Children\u27s Hospital

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    Lurie Children’s Gender and Sex Development Program is one of its kind in the Chicagoland region, providing services to intersex/DSD (Disorders of Sex Development), transgender, gender non-conforming (GNC), and gender expansive youth. This poster will provide an overview of the program, highlighting the specific needs of the populations that it serves. In addition to this, details of the specific projects that I was involved with will also be discussed, including: DSD-Translational Research Network (TRN) clinic, trans and GNC teen groups, and focus groups assessing co-occurring issues of depression and anxiety among trans and GNC youth. Aside from these projects, the poster will also emphasize on how this internship helped me begin my career path in becoming a provider for LGBTQI+ populations.https://via.library.depaul.edu/psychologynight/1044/thumbnail.jp

    Ethnic Socialization and Psychosocial Outcomes Among Children and Adolescents: The State of the Field

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    The process by which parents teach their children about values, meaning, and information on race and ethnicity is referred to as ethnic/racial socialization (Hughes et al., 2006; Parke & Buriel, 2008).Understanding such practices is important in knowing how they impact psychosocial and academic outcomes as the racial/ethnic makeup of the U.S. is changing. Predictions indicate that the majority of the US population will be of ethnic minority background by 2043 (US Census Bureau, 2012). This meta-analysis aims to identify the differences in ethnic/racial socialization practices and outcomes among ethnic minority groups. The present study will outline the methodology and outcomes of the literature search by presenting the current state of the field in ethnic/racial socialization as it relates to psychosocial and academic outcomes. Studies included in this analysis consist of published articles obtained through literature searches using PsychInfo and Google Scholar and which met the following inclusion criteria: 1) conducted in US; 2) agehttps://via.library.depaul.edu/psychologynight/1012/thumbnail.jp

    Disorders of sex development (DSD) web-based information: quality survey of DSD team websites

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    Abstract Objectives Consumers rely on online health information, particularly for unusual conditions. Disorders of Sex Development (DSD) are complex with some aspects of care controversial. Accurate web-based DSD information is essential for decision-making, but the quality has not been rigorously evaluated. The purpose of the present study was to assess the quality of online health information related to DSD presented by 12 pediatric institutions comprising the NIH-sponsored DSD-Translational Research Network (DSD-TRN). Methods DSD-TRN sites identified team webpages, then we identified linked webpages. We also used each institution search engine to search common DSD terms. We assessed webpages using validated tools: the Simple Measure of Gobbledygook (SMOG) determined reading level, the Patient Education Materials Assessment Tool (PEMAT) evaluated content for understandability and actionability, and the DISCERN tool assessed treatment decision-making information (for hormone replacement and surgery). We developed a “Completeness” measure which assessed the presence of information on 25 DSD topics. Results The SMOG reading level of webpages was at or above high-school grade level. Mean (SD) PEMAT understandability score for Team Pages and Team Links was 68% (6%); on average these pages met less than 70% of the understandability criteria. Mean (SD) PEMAT actionability score was 23% (20%); few patient actions were identified. The DISCERN tool determined that the quality of information related to hormone treatment and to surgery was poor. Sites’ webpages covered 12–56% of the items on our Completeness measure. Conclusions Quality of DSD online content was poor, and would be improved by using a variety of strategies, such as simplifying word choice, using visual aids, highlighting actions patients can take and acknowledging areas of uncertainty. For complex conditions such as DSD, high-quality web-based information is essential to empower patients (and caregiver proxies), particularly when aspects of care are controversial.http://deepblue.lib.umich.edu/bitstream/2027.42/173185/1/13633_2019_Article_65.pd
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