Ethics of the health-related internet of things: a narrative review

The internet of things is increasingly spreading into the domain of medical and social care. Internet-enabled devices for monitoring and managing the health and well-being of users outside of traditional medical institutions have rapidly become common tools to support healthcare. Health-related internet of things (H-IoT) technologies increasingly play a key role in health management, for purposes including disease prevention, real-time tele-monitoring of patient’s functions, testing of treatments, fitness and well-being monitoring, medication dispensation, and health research data collection. H-IoT promises many benefits for health and healthcare. However, it also raises a host of ethical problems stemming from the inherent risks of Internet enabled devices, the sensitivity of health-related data, and their impact on the delivery of healthcare. This paper maps the main ethical problems that have been identified by the relevant literature and identifies key themes in the on-going debate on ethical problems concerning H-IoT

A semiotic approach to ad-hoc networked environments

The aim of the work in this thesis is to develop a new approach of interacting with adhoc networked environments. These are networks where devices connect on demand with no underlying network infrastructure. The intention of this work is to develop these environments so that devices and services on these networks can publish their services, query for other services and connect with each other when required. The devices need to be able to perform these actions without prior knowledge of each other, therefore a theory of communication, semiotics, is presented. Ad-hoc networks provide an appropriate test-bed for this application of semiotics as they allow services to `know' about each other and communicate with one another. By using semiotics, we aim to create a representation of communication that allows a system to communicate within the networked environment and ask for services and connections as well as interact with users and provide. This way a user can demand something from the surrounding environment and the elements within this environment can communicate with each other to provide the service the user required. To create an effective model for this representation, various research areas will be discussed such as smart environments, natural language processing, multicast environments and human computer interaction. Principles will be used from all these areas to implement an approach of interacting with smart environments. Different types of smart environments, such as as smart homes and m-commerce environments, will be used to observe how di erent contexts a ect communication. A prototype system was realised for proof of concept and evaluated by subjects. This work highlighted the feasibility of this approach and opened a new area worthwhile of further research.EThOS - Electronic Theses Online ServiceGBUnited Kingdo

On the relative importance of privacy guidelines for ambient health care

We present an empirical study regarding the relative importance of complying with privacy related guidelines in the context of a Health Monitoring System. Participants were confronted with text scenarios describing privacy related aspects of a health monitoring service for daily use at home. Participants assessed the relative importance to them of simplified variants of the OECD (Organization of Economic Cooperation and Development) guidelines for the protection of personal data. The guidelines that relate to Insight and Openness were most valued. The guidelines relating to Modification and Data Quality were valued least by most participants in this context. Methodological challenges were encountered on the way, which reveal the complexity of conducting empirical investigations of privacy aspects of human-computer interaction

On the relative importance of privacy guidelines for ambient health care

We present an empirical study regarding the relative importance of complying with privacy related guidelines in the context of a Health Monitoring System. Participants were confronted with text scenarios describing privacy related aspects of a health monitoring service for daily use at home. Participants assessed the relative importance to them of simplified variants of the OECD (Organization of Economic Cooperation and Development) guidelines for the protection of personal data. The guidelines that relate to Insight and Openness were most valued. The guidelines relating to Modification and Data Quality were valued least by most participants in this context. Methodological challenges were encountered on the way, which reveal the complexity of conducting empirical investigations of privacy aspects of human-computer interaction

On the Ethical Implications of Personal Health Monitoring

Recent years have seen an influx of medical technologies capable of remotely monitoring the health and behaviours of individuals to detect, manage and prevent health problems. Known collectively as personal health monitoring (PHM), these systems are intended to supplement medical care with health monitoring outside traditional care environments such as hospitals, ranging in complexity from mobile devices to complex networks of sensors measuring physiological parameters and behaviours. This research project assesses the potential ethical implications of PHM as an emerging medical technology, amenable to anticipatory action intended to prevent or mitigate problematic ethical issues in the future. PHM fundamentally changes how medical care can be delivered: patients can be monitored and consulted at a distance, eliminating opportunities for face-to-face actions and potentially undermining the importance of social, emotional and psychological aspects of medical care. The norms evident in this movement may clash with existing standards of ‘good’ medical practice from the perspective of patients, clinicians and institutions. By relating utilitarianism, virtue ethics and theories of surveillance to Habermas’ concept of colonisation of the lifeworld, a conceptual framework is created which can explain how PHM may be allowed to change medicine as a practice in an ethically problematic way. The framework relates the inhibition of virtuous behaviour among practitioners of medicine, understood as a moral practice, to the movement in medicine towards remote monitoring. To assess the explanatory power of the conceptual framework and expand its borders, a qualitative interview empirical study with potential users of PHM in England is carried out. Recognising that the inherent uncertainty of the future undermines the validity of empirical research, a novel epistemological framework based in Habermas’ discourse ethics is created to justify the empirical study. By developing Habermas’ concept of translation into a procedure for assessing the credibility of uncertain normative claims about the future, a novel methodology for empirical ethical assessment of emerging technologies is created and tested. Various methods of analysis are employed, including review of academic discourses, empirical and theoretical analyses of the moral potential of PHM. Recommendations are made concerning ethical issues in the deployment and design of PHM systems, analysis and application of PHM data, and the shortcomings of existing research and protection mechanisms in responding to potential ethical implications of the technology.he research described in this thesis was sponsored and funded by the Centre for Computing and Social Responsibility of De Montfort University, and was linked to the research carried out in FP7 research projects PHM-Ethics (GA 230602) and ETICA (Ethical Issues of Emerging ICT Applications, GA 230318)