1 research outputs found
Data Management Challenges in Paediatric Information Systems
There is a compelling demand for the data integration and exploitation of
heterogeneous biomedical information for improved clinical practice, medical
research, and personalised healthcare across the EU. The area of paediatric
information integration is particularly challenging since the patients
physiology changes with growth and different aspects of health being regularly
monitored over extended periods of time. Paediatricians require access to
heterogeneous data sets, often collected in different locations with different
apparatus and over extended timescales. Using a Grid platform originally
developed for physics at CERN and a novel integrated semantic data model the
Health-e-Child project has developed an integrated healthcare platform for
European paediatrics, providing seamless integration of traditional and
emerging sources of biomedical data. The long-term goal of the project was to
provide uninhibited access to universal biomedical knowledge repositories for
personalised and preventive healthcare, large-scale information-based
biomedical research and training, and informed policy making. The project built
a Grid-enabled european network of leading clinical centres that can share and
annotate paediatric data, can validate systems clinically, and diffuse clinical
excellence across Europe by setting up new technologies, clinical workflows,
and standards. The Health-e-Child project highlights data management challenges
for the future of European paediatric healthcare and is the subject of this
chapter.Comment: 16 pages, 4 figures, 1 table. arXiv admin note: substantial text
overlap with arXiv:0812.2874, arXiv:cs/0603036, arXiv:0707.076