A Survey of the Attitudes of Public Library Patrons on Submitting a Personal DNA Sample for Genetic Research

Research utilizing large genetic databases containing individual contributors' personal DNA information has led to the discovery of disease associations and medical treatment breakthroughs. Willingness among the public to submit a DNA sample for medical research is not universal. To better understand reasons why people may or may not want to contribute their personal DNA for research, a survey of public library patrons was conducted. The results show that fear of health insurers, employers, and law enforcement learning the results are impediments to DNA donation that current legal protections against discrimination alone may not satisfy. Nonetheless there is strong support for medical genetic research among the public as long as confidentiality and anonymity are maintained