A survey on Perceptions of Nursing Support in Families of Patients with Malignant Brain Tumors with Cognitive Decline.

Abstract

要　　旨 　希少がんである悪性脳腫瘍患者には認知機能低下が起こりやすく，家族が抱える苦悩も大きい．よって家族への適切な看護支援が求められるが，その実態は明らかでない．本研究では，パイロットスタディに基づき作成された質問紙を用い，認知機能低下を起こした悪性脳腫瘍患者の家族における看護支援の受け止めを明らかにすることを目的とし調査を行った．脳腫瘍外科手術を扱う58施設の看護責任者に調査主旨を書面で説明し，3 施設から協力を得て、20 部ずつ配布を依頼したところ，全部で12 通の回答を得た．悪性脳腫瘍患者の家族は，看護師が家族に対し意図的に行っている看護支援を受けていると認識していた．また看護支援を受けている認識と，「問題対処への自信の程度」には強い正の相関がみられた．同時に，家族に対する直接的な精神的側面への配慮は家族の精神的な落ち着きとは相関が低く，看護師の認識と差がある可能性が示唆された．Abstract 　Malignant brain tumors, a rare cancer, are prone to cognitive decline, and their families suffer greatly. Appropriate nursing support for family is required, but the nursing support is not clear. In this study, a survey conducted to clarify family members’ perception of nursing support for family members of patients, using a questionnaire developed based on a pilot study. The purpose of the survey was explained to the chief nursing officers of 58 neurosurgery hospitals, and cooperation was obtained from 3 facilities. Twenty questionnaires were mailed to each hospital, and total 12 responses were received. Family members of patients perceived that they were receiving nursing support. There was a strong positive correlation between the level of confidence in coping with problems and the level of nursing support. In addition, direct emotional support for the family was not correlated with the family’s emotional calmness, suggesting that there may be a difference between the nurses’ perception and the family’s perception.departmental bulletin pape