The aim of the study is to provide a detailed description of our own experience in the treatment of a rare nosologic form of the disease, in order to expand the knowledge base on possible options of tactics of management of such a group of patients.Цель исследования – представить описание собственного опыта лечения редкой нозологической формы заболевания, с целью расширения базы знаний о возможных вариантах тактики ведения подобной группы пациентов
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