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RARE VISIBLE DISORDERS/DISEASES AS INDIVIDUALLY IDENTIFIABLE HEALTH INFORMATION

By Tewodros Eguale, Gillian Bartlett and Robyn Tamblyn

Abstract

Individually identifiable health information needs to be masked or deleted in the secondary use of data for research. We defined and identified rare visible disorders as part of de-identification of individually identifiable health information. The prevalence of these disorders was evaluated using an administrative database and conformed to our definition. Due emphasis should be given to rare visible disorders in the de-identification process of health information

Topics: Article
Publisher: American Medical Informatics Association
OAI identifier: oai:pubmedcentral.nih.gov:1560775
Provided by: PubMed Central
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