Skip to main content
Article thumbnail
Location of Repository

Stakeholder Perspectives on the Development of a Virtual Clinic for Diabetes Care: Qualitative Study

By Natalie Armstrong, Hilary Hearnshaw, John Powell and Jeremy Dale

Abstract

Background: The development of the Internet has created new opportunities for health care provision, including its use as a tool to aid the self-management of chronic conditions. We studied stakeholder reactions to an Internet-based “virtual clinic,” which would allow people with diabetes to communicate with their health care providers, find information about their condition, and share information and support with other users.\ud Objective: The aim of the study was to present the results of a detailed consultation with a variety of stakeholder groups in order to identify what they regard as the desirable, important, and feasible characteristics of an Internet-based intervention to aid diabetes self-management.\ud Methods: Three focus groups were conducted with 12 people with type 1 diabetes who used insulin pumps. Participants were recruited through a local diabetes clinic. One-on-one interviews were conducted with 5 health care professionals from the same clinic (2 doctors, 2 nurses, 1 dietitian) and with 1 representative of an insulin pump company. We gathered patient consensus via email on the important and useful features of Internet-based systems used for other chronic conditions (asthma, epilepsy, myalgic encephalopathy, mental health problems). A workshop to gather expert consensus on the use of information technology to improve the care of young people with diabetes was organized.\ud Results: Stakeholder groups identified the following important characteristics of an Internet-based virtual clinic: being grounded on personal needs rather than only providing general information; having the facility to communicate with, and learn from, peers; providing information on the latest developments and news in diabetes; being quick and easy to use. This paper discusses these characteristics in light of a review of the relevant literature. The development of a virtual clinic for diabetes that embodies these principles, and that is based on self-efficacy theory, is described.\ud Conclusions: Involvement of stakeholders is vital early in the development of a complex intervention. Stakeholders have clear and relevant views on what a virtual clinic system should provide, and these views can be captured and synthesized with relative ease. This work has led to the design of a system that is able to meet user needs and is currently being evaluated in a pilot study

Publisher: Gunther Eysenbach
Year: 2007
DOI identifier: 10.2196/jmir.9.3.e23
OAI identifier: oai:lra.le.ac.uk:2381/8421
Journal:

Suggested articles

Citations

  1. (2002). A framework for the evaluation of Internet-based diabetes management. doi
  2. (2002). A telemedicine support for diabetes management: the T-IDDM project. Comput Methods Programs Biomed doi
  3. (2006). Accuracy and self correction of information received from an internet breast cancer list: content analysis. BMJ doi
  4. An Internet-based patient-provider communication system: randomized controlled trial. doi
  5. Attitudes of young people with diabetes to an Internetbased virtual clinic. doi
  6. (2000). Behavioral interventions for adolescents with type 1 diabetes: how effective are they? Diabetes Care doi
  7. (2004). Email consultations in health care: 2--acceptability and safe application. doi
  8. (2002). Evaluation of accessibility and use of new communication technologies in patients with type 1 diabetes mellitus. doi
  9. (1998). Feasibility and use of an Internet support service for diabetes self-management. Diabetes Educ doi
  10. (2004). Health related virtual communities and electronic support groups: systematic review of the effects of online peer to peer interactions. BMJ doi
  11. Internet interventions for long-term conditions: patient and caregiver quality criteria. doi
  12. Internet-based diabetes selfmanagement and support: initial outcomes from the diabetes network project. doi
  13. (2004). Patients' experience with a diabetes support programme based on an interactive electronic medical record: qualitative study. BMJ doi
  14. Privacy vs usability: a qualitative exploration of patients' experiences with secure Internet communication with their general practitioner. doi
  15. (1977). Self-efficacy: toward a unifying theory of behavioral change. Psychol Rev doi
  16. (2002). Telemedicine as a tool for intensive management of diabetes: the DIABTel experience. Comput Methods Programs Biomed doi
  17. (2000). The chatline as a communication and educational tool in adolescents with insulin-dependent diabetes: preliminary observations. Diabetes Care doi
  18. (2003). The D-Net diabetes selfmanagement program: long-term implementation, outcomes, and generalization results. Prev Med doi
  19. Use of the Internet to optimize selfmanagement of type 1 diabetes: preliminary experience with DiasNet. doi
  20. (2003). Using an Internet comanagement module to improve the quality of chronic disease care.
  21. (2005). Web-based care management in patients with poorly controlled diabetes. Diabetes Care doi
  22. (2004). Web-based diabetes control. doi
  23. (2001). What attracts patients with diabetes to an internet support group? A 21-month longitudinal website study. Diabet Med doi

To submit an update or takedown request for this paper, please submit an Update/Correction/Removal Request.