A Content Analysis of Youth Sexual Health Websites: Exploring their Relevance and Accessibility for Youth with Disabilities

oai:ht.journals.yorku.ca:article/37271Because web-based campaigns are an important part of health promotion campaigns for youth, this research examines sexual health websites aimed at youth and explores the messages on HIV/AIDS for their relevance and accessibility for youth with disabilities. The researchers’ underlying understanding of disability is that it is socially constructed and that people with disabilities experience social exclusion. We used a directed content analysis method to analyze 21 websites that met our inclusion criteria based on our indicators of accessibility and relevance and for their key messages. We found that the messaging across all sites was highly consistent: sex-positive, gay-positive, and non-judgmental about youth sexual expression. However, none of the prevention information specifically considered mobility, verbal and cognitive disability, participation and information barriers faced by youth with disabilities, or their heightened sexual vulnerability. Only one site depicted disability in images and none depicted disability and sexuality. There is a clear need to better understand the sexual health information needs of youth with disabilities and to develop safe sex information that is relevant and accessible to them

Condoms and Contradictions: Assessing Sexual Health Knowledge in Lesbian, Gay, Bisexual, Trans, and Queer Youth Labelled with Intellectual Disabilities

Background: Accessible, culturally relevant data collection tools to assess the sexual health knowledge of lesbian, gay, bisexual, trans, queer and questioning (LGBTQ) young people labelled with intellectual disabilities are sparse. Materials and Methods: Using community-based participatory research (CBPR) we piloted a variety of interactive activities designed to assess the sexual health knowledge and decision making skills of LGBTQ young people with intellectual disabilities. Results: Posters created by youth participants suggested substantial sexual health knowledge and empowerment, while individual knowledge assessment scores indicated a range in understanding of risks and strategies to avoid pregnancy, HIV and herpes. Conclusions: These findings reinforce the importance of using multiple strategies to assess sexual knowledge with this population. Creative evaluation strategies catering to the cultural specificities, sexual experiences, and cognitive abilities of diverse youth help to clarify gaps in knowledge and areas for renewed attention. Keywords: HIV/AIDS; community-based participatory research; intellectual disabilities; lesbian, gay, bisexual, and trans (LGBT); sexual health Les outils de collecte des données, accessibles et culturellement appropriés, afin d’évaluer les connaissances sur la santé sexuelle des jeunes LGBT (Lesbiennes, Gais, Bisexuel-les et Trans) ayant des handicaps intellectuels sont rares. Nous avons pilotés une variété d’activités interactives ayant pour but l’évaluation des connaissances en santé sexuelle et des compétences pour la prise de décision de jeunes LGBT ayant des handicaps intellectuels. Les affiches créées par les jeunes participants indiquent une responsabilisation et une connaissance approfondie de la santé sexuelle. Les résultats des évaluations de la connaissance en santé sexuelle indiquent une bonne compréhension des risques et des stratégies pour éviter la grossesse, Le VIH et l’herpès. Les résultats obtenus renforcent l’importance d’utiliser diverses stratégies pour évaluer la connaissance en santé sexuelle de cette population. Des stratégies d’évaluation créatives qui adressent les spécificités culturelles, les expériences sexuelles et les habilités cognitives de différents jeunes aident à clarifier les lacunes en connaissance et les domaines qui nécessitent une attention accrue. Mots-clés: VIH/SIDA; recherche participative axée sur la communauté; handicaps intellectuels; (LGBT) lesbiennes, gais, bisexuel-les et trans; santé sexuell

Reclaiming Agency, Ensuring Survival: Disabled Urban Ghanaian Women's Negotiations of Church and Family Belonging

This paper draws from a narrative ethnography of women members of disabled people's organizations (DPOs) in Accra, Ghana. Through recounting their autobiographical stories, elicited in multiple interviews, it explores how they navigate tensions among disability status, material survival, family belonging and religious participation Finding themselves neither fully acknowledged in family roles nor as religious community members, disabled women struggle to carve out spaces of self-determination and well-being between families and religious institutions, and between their developing aspirations and the circumscribed options available to them at the intersections of poverty, gender and disability. Women draw from multiple experiences, communities and discourses to interpret disability in complex and varied ways, not solely within the "moral models" often attributed to African cultures. Utilizing three biographical narratives from a 2003-2004 qualitative study, this paper shows how urban Ghanaian women with disabilities work to redefine themselves as social participants, and indeed as fully human, through engagement with religion. Implications for disability activism are discussed in the paper's conclusion

"In the same soup": Marginality, vulnerability and belonging in life stories of disabled Ghanaian women.

"In the same soup": Marginality, vulnerability and belonging in life stories of disabled Ghanaian women

Navigating risks and professional roles: Research with lesbian, gay, bisexual, trans, and queer young people with intellectual disabilities

WE EXAMINE ETHICAL ISSUES THAT emerged during a community-based participatory research (CBPR) study in Toronto, Canada, exploring sexual health attitudes and practices among lesbian, gay, bisexual, trans, queer, and questioning (LGBTQ) young people (ages 17-26) labeled with intellectual disabilities. These ethical concerns included: (1) managing the risk of coercion, (2) consent to participate in the study, (3) issues of confidentiality and disclosure, (4) balancing beneficence with self-determination, and (5) role conflict for researcher-practitioners who participate in CBPR projects. Incorporating critical disability perspectives and a heightened awareness of professional role conflict into CBPR practices has the potential to foster development of more inclusive and accessible sexual health initiatives and research environments

Seeking Safer Sexual Spaces: Queer and Trans Young People Labeled with Intellectual Disabilities and the Paradoxical Risks of Restriction

Young lesbian, gay, bisexual, and transgender (LGBT) people labeled with intellectual disabilities have unique sexual health needs that are not being met. Denial by others of their right to pleasure and the exercise of heightened external control over their sexuality are commonplace. Current research indicates that these youth are at heightened risk for compromised sexual health. This study aimed to explore the ways in which social and environmental conditions influence vulnerability to adverse sexual health outcomes for this population. We used a community-based research approach to conduct qualitative interviews and focus groups with 10 young LGBT people (aged 17-26) labeled with intellectual disabilities. Participants reported multiple limitations on their autonomy that resulted in having sex in places where they did not feel comfortable and were unlikely to practice safer sex. Attempts by authority figures to protect youth through limits on their autonomy may be unintentionally leading to negative sexual health outcomes

Condoms and Contradictions: Assessing Sexual Health Knowledge in Lesbian, Gay, Bisexual, Trans, and Queer Youth Labelled with Intellectual Disabilities

Background: Accessible, culturally relevant data collection tools to assess the sexual health knowledge of lesbian, gay, bisexual, trans, queer and questioning (LGBTQ) young people labelled with intellectual disabilities are sparse. Materials and Methods: Using community-based participatory research (CBPR) we piloted a variety of interactive activities designed to assess the sexual health knowledge and decision making skills of LGBTQ young people with intellectual disabilities. Results: Posters created by youth participants suggested substantial sexual health knowledge and empowerment, while individual knowledge assessment scores indicated a range in understanding of risks and strategies to avoid pregnancy, HIV and herpes. Conclusions: These findings reinforce the importance of using multiple strategies to assess sexual knowledge with this population. Creative evaluation strategies catering to the cultural specificities, sexual experiences, and cognitive abilities of diverse youth help to clarify gaps in knowledge and areas for renewed attention. Keywords: HIV/AIDS; community-based participatory research; intellectual disabilities; lesbian, gay, bisexual, and trans (LGBT); sexual health Les outils de collecte des données, accessibles et culturellement appropriés, afin d’évaluer les connaissances sur la santé sexuelle des jeunes LGBT (Lesbiennes, Gais, Bisexuel-les et Trans) ayant des handicaps intellectuels sont rares. Nous avons pilotés une variété d’activités interactives ayant pour but l’évaluation des connaissances en santé sexuelle et des compétences pour la prise de décision de jeunes LGBT ayant des handicaps intellectuels. Les affiches créées par les jeunes participants indiquent une responsabilisation et une connaissance approfondie de la santé sexuelle. Les résultats des évaluations de la connaissance en santé sexuelle indiquent une bonne compréhension des risques et des stratégies pour éviter la grossesse, Le VIH et l’herpès. Les résultats obtenus renforcent l’importance d’utiliser diverses stratégies pour évaluer la connaissance en santé sexuelle de cette population. Des stratégies d’évaluation créatives qui adressent les spécificités culturelles, les expériences sexuelles et les habilités cognitives de différents jeunes aident à clarifier les lacunes en connaissance et les domaines qui nécessitent une attention accrue. Mots-clés: VIH/SIDA; recherche participative axée sur la communauté; handicaps intellectuels; (LGBT) lesbiennes, gais, bisexuel-les et trans; santé sexuelle</p

Reflechi twòp—Thinking Too Much: Description of a Cultural Syndrome in Haiti’s Central Plateau

A rich Haitian ethnopsychology has been described, detailing concepts of personhood, explanatory models of illness, and links between mind and body. However, little research has engaged explicitly with mental illness, and that which does focuses on the Kreyòl term fou (madness), a term that psychiatrists associate with schizophrenia and other psychoses. More work is needed to characterize potential forms of mild-to-moderate mental illness. Idioms of distress provide a promising avenue for exploring common mental disorders. Working in Haiti\u27s Central Plateau, we aimed to identify idioms of distress that represent cultural syndromes. We used ethnographic and epidemiologic methods to explore the idiom of distress reflechi twòp (thinking too much). This syndrome is characterized by troubled rumination at the intersection of sadness, severe mental disorder, suicide, and social and structural hardship. Persons with thinking too much have greater scores on the Beck Depression Inventory and Beck Anxiety Inventory. Thinking too much is associated with 8 times greater odds of suicidal ideation. Untreated thinking too much is sometimes perceived to lead to psychosis. Recognizing and understanding thinking too much may allow early clinical recognition and interventions to reduce long-term psychosocial suffering in Haiti\u27s Central Plateau